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Scoliosis Surgery Questions

shannonb204sshannonb204 Posts: 1
edited 01/19/2014 - 8:19 PM in Scoliosis


  • LizLiz Posts: 7,832
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    Spinal stenosis since 1995
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  • bbnaz22bbbnaz22 Posts: 1
    edited 04/18/2013 - 10:44 AM
    Shannonb2o4, I hope the info I offer here is helpful. Although you say your curve is "only" 35 degrees, it sound like you have the kind of scoliosis that not only curves your spine, but also TWISTS it. There in lies the problem. I was born with a birth defect that left me with sever scoliosis (65 degree curve), mine also twists. I am 50 now and I am having some trouble. But I had my lower spine fused when I was 16, and pretty much did good until 45 years old. I think at 35 degree curve, they could 'straighten' your spine. That's what they want to do to me now. If I wasn't already fused I think I would jump at the chance. But breaking fusions that have been there for 35 years is scary. So I am not sure if you were asking about spinal fusion surgery or surgery to straighten your spine? At 24 years old, if they offer to straighten it, I would seriously consider it. A fusion would help your pain as well but when you get old, you may run into trouble as I have. When I was 16, there was no choice. I think they have been 'straightening' spines for 15 years or so now. But if you are in pain every day, if fusion is all they will do, I think I would. Your scoliosis will not improve with age, that is for sure.

    Good luck to you and hope you get the help you need. I forgot to ask you how active you are? It is VERY VERY important that you keep your core strong! It helps keep your spine straight as possible!!
    maureen holt
  • I am 48 and had scoliosis surgery at age 12 back in the 70s. I recently have had several surgical opinions due to related problems and was told the following:
    Scoliosis surgery today (2013) is about the sagittal and coronal balance or planes of the body....meaning if you divided your body into right and left halves and front to back - are you leaning off to one side or tilting forward or back etc....the doctors take those measurements - and those measurements are more important than the angle of your curvature.

    You describe your rib hump and leaning to one side which would indicate a problem with your spinal balance or a spinal imbalance.

    Do not be put off by the degree of your curve not being "bad enough" to warrant surgery.....you are 24 and having so much pain related to the spinal imbalance (sagittal and coronal balance/planes).

    Please do not hesitate to get your spine fixed. At age 24 you have so much life left. You are in so much pain now simply doing your daily "life" - school, work etc...what do you think your future holds if you do not get this spinal issue fixed now?

    Please, please believe in yourself and validate your own pain, your personal journey, not related to other people and their scoliosis - concentrate on getting yourself fixed - there is a great chance that you will be extremely happy with the outcome.

    Good luck and I ask all who read this to send up a short prayer for healing.
  • I agree with the others.... please, go ahead and get on that wait list to see a spine specialist. Surgery may or may not be the answer. I understand how it feels to be "crooked" physically. The truth is, we notice it more than others. Wear your tank tops, go swimming... and see that spine specialist. Don't hide behind who you are. Scoliosis is actually very common, though usually not at your degree of curvature... but sharing that with your friends is a good thing, one of them might also have scoliosis, and it's alays good to have someone to talk to. You've certainly come to the right place.

    And on a side note... I've had 5 back surgeries.... 1 I grew 2 inches.... and 1 I grew "back" almost 4".

    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • Get on that wait list asap Shannon. Also, (importantly) update your scoliosis x-rays. You might find your curve has progressed rapidly, which it does in some people. Over the years I've heard of people with 80 degree curves with no pain but others with 30 degree curves and a lot of pain. Some doctors won't do scoli surgery under 45 degrees - you may well be over that mark already. Your rib hump indicates rotation, a common phenomenon in scoliosis. Good luck!
  • Sounds like you defiantly need to see somebody, just for the fact that it hurts you so much.
    I had surgery when I was 14 and has two 65 degree curves, but the main reason I was Seen was because of the fact it hurt me.
    I had a massive rib hump as well, that has now gone, you can only very slightly tell now, other than my scar of course.
    Also, I grew 2 inches ;)
  • I also found out I had scoliosis when I was 14, and had a 35 degree curve. I never actually wore the brace that was made for me and except for some physiotherapy I did not do much about it. Now I'm 26 and just had my back checked and turns out my curve is still 35, and not progressing. I do have night disconfort sometimes and also muscle pains if i sit for too long or stand up too long, but it's been manageable so far. The doctors said it's too late for surgery now. That I should just deal with it through intense daily gymnastics for the condition, and surgery could only ease some 10 degrees, not much more. I also have some twisting in the curve, but not very bad. One year ago when I was also saying that I really need surgery and have to go see a doctor ASAP, i eventually ended up doing a daily massage plus exercise and felt good enough not to go see anyone for a while. seems like now I've abandoned exercising again so the pain came back. So maybe it is manageable at this degree with only gymnastics but probably depends a lot on the twist.
  • Hey Shannon!
    I'm also a Shannon too but the other type. I'm not sure wut my curve is @ 31 but I hav had my share of back/rib pain. I thank God my parts never opp for straighten my back or eyed to corrected my back or ribs. I am able to go out & cut and split wood but suffer in the evening. But I am not ashamed of it. As a native American I've always had looks wondering why I'm the way I am but I think I've learned more patience with how people think of my back & ribs. Believe me I'm pretty obvious to look at. So time will help but it dont matter wut people think about u. jus find someone who is crazy about u. as far is surgery, is ur choice, if it ain't bad - deal with it everyday, if it's bothering you-you deserve abetter life. I how you do wut makes you happy. We all know wut we can and can't do. I wish you luck!
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