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I feel guilty

I feel guilty that I am not in as much pain as I should. I've had problems with pain but not as bad as I see others. I have congenial scoliosis and kyphosis and the only thing my parents did was have my back fused. Not my whole back but my upper back. I can't turn my head to the left very far but its fine to the right. Also not so far looking up. My twin brother is 10mins older then me and stands 6ft 3inches. I'm 5ft 2inches. I partisapated in basketball in grade school and high school with the only problem being breathing room in my chest but mind over matter! I own my own home, drive any that I want, including machinery. I am native american living on the rez and I have never met anyone on the rez like me. I know poeple that have had their back fused from ware and tear and they are worst off then I have ever been. I don't get it. I guess I'm just looking for someone to talk to about this. I know how lucky I am. Drs told my folks I wouldn't be here when I was 20yrs old. I am so thankful for my life and the way its turned out. I am very traditional am I have tried to keep it with me all my life. So, I hope you out there that are in pain, keep your head up!!
Thank you!


  • Most people here would be happy that you have a break from the pain. It's just good to find other people with similar conditions to you so you don't feel like you are the only one in the world.
  • Kiki48KKiki48 Posts: 196
    edited 05/13/2013 - 4:06 AM
    Hi Arrow Creek, welcome to Spine Health. Yes try not to feel guilty. I'm happy for you that your not in as much pain as others. I think that's pretty cool myself. I think most of us here are happy for those that are in less pain than us and we feel for those who are in more. Enjoy it. Please! I will be sending you a PM shortly but I wanted to give you a quick shout out on this thread.

  • Hello arrow Creek, welcome! Never feel guilty. Feel free to vent, talk or even just share more. Pain is subjective to each person. I'm also happy that you seem to be handling things well.
  • Hi Arrow Creek and welcome!

    I appreciate your kind thoughts. I really believe us folks with chronic pain are pretty resilient.

    Naturally we have our tough times.......speaking for myself here, I'm grateful that all of you are here to help through those dark times.

  • Thanks all!! Sure helps!!
  • Welcome to Spine Health. I have pre adolescent scoliosis.... and up until a few years ago had very little problems associated with my fusion. Unfortunately once I did start having problems I ignored them... or tried to tell myself it was expected or not as bad as I thought, etc. Please don't do that to yourself. Be sure to check in regularly with a spine specialist, even if they don't think they need to see you. Best of luck to you.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • Thanks. Yea I plan on getting some checkups started this summer. I am very thankful that I am abe to do the things I can do. I'm outside most the time in the summer do work around the house so I try to stay active most the day. I'm sure there's others like me that as active as I am & iure there's not. We all have our own things in life to bare and I'm just doing my best to make a better life for myself, and being thankful for everything my folks did for me. I'm also thankful for all your support on this site. Good to know that I have ppl that can relate to me!! Thanks!!
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