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epidural fibrosis

I have been reading post on this subject but cant find any related to my condition. I have epidural fibrosis at the S1 nerve root and have not had surgery in the L5-S1 disc. I have had trouble with this disc for several years but the surgane said it was not bad enough for surgery so I have been given a number of epidural steroid injections in this disc. I did have surgery on the L3-L4 disc last July witch I have had some leg pain left but not enough to complain about. I'm thinking it was the injections that caused the scar tissue. The sugane dosn't really say anything about what might have caused it and is reliecing me to my primary doctor who wants to lower the amount of meds I am taking. I can barely get thrue a day of work now. I am scared I am going to have to go on disability and not be the provider I am supposed to be.


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • is another name for scar tissue. It could be caused by the injections or it could be from your previous surgery. If you didn't have surgery at the L5 disc level then it wouldn't be the disc that is causing the problem it is the scar tissue around the nerve root at that level. That is why the surgeon is not suggesting more surgery, because it can make the scar tissue problem worse.
    There are nerve pain medications that might be a better choice in relieving that type of pain- gabapentin, lyrica, cymbalta, topamax, are all medications used to treat neuropathic pain.
  • Had five steroid injections last year for a "slipped disc" from a neurosurgeon who said the only alternative was major surgery. Went to another doctor for a second opinion and an MRI. He diagnosed my condition as "not bad, just general aging", but wanted to remove a synovial cyst and do fusion, which I didn't want. After that I was sent to a pain doctor, who performed a TFE, which only helped for two days. He scheduled a surgery to aspirate the cyst (without fusion), but wanted me to have a second MRI first. After viewing the MRI, he cancelled the surgery and said he could do nothing else for me. I have an appointment with a third neurosurgeon this Friday, who removed two synovial cysts from a girl's spine with no fusion. If I am told that removing my cyst will not help matters and that I need surgery, I want to consider fibrin injections fromo Dr. Paulza in Tyler, Texas, since I cannot find a neurosurgeon who does them here in Arkansas. Is anyone else familiar with these injections? To me, it would be better than having metal in my back with limited mobility and future problems. I want to be able to run again.
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