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Help the truth am I gunna be like this for the rest of my life?

thoracic spine painthoracic spine pain Posts: 566
edited 06/19/2013 - 9:30 PM in Upper Back Pain, Thoracic
Could someone please give me some advice. I may be dumb but I have only just put 2 and 2 together and it is my central nervous system that is damaged by breaking my back.

Firstly how can anyone doubt pain if your central nervous system is damaged?

I have been in excruciating pain day and night, except while I am asleep. I kept working for 6 years which probably made it worse as a lot of my work was computer based. I take opoid painkillers with muscle relaxants but often this does not relieve my pain. Sometimes it doesn't even take it down a notch.

Has anyone had a successful operation on their thoracic spine - trauma accident - that has relieved the pain?


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Comments

  • I had surgery at T1/2 and it went very bad. There have been a few people here who had surgery at the lower thoracic levels so you might look for those posts. Probably two years ago.

    The first thing you need to do is find out exactly what is causing your pain. I used a pain journal to figure it out. Keep a really detailed list of every little thing you feel for a week. Then see what common causes exist and what might have helped. Then with your doctor you should be able to pin point where the pain is coming from. A dermatone map is a huge help. If you feel pain xxx you can trace it back to where the nerves go in the spine. It won't help to have surgery in the wrong spot. Then you try injections or RFA to see if that is really the right spot. Just because you have a fracture doesn't mean that is causing your pain. If that helps but doesn't last you look into surgery.

    The surgery itself is massive. Basically it involves opening up your abdomen, removing most of your major organs, working on the spine and then putting it all back together. Surgeries often last 10-12 hours or more. And of course the complications and recovery is major. Then just like all spine surgery there is the risk of failure or chain reaction new issues.

    You mention your central nervous system. Well everything spine related has to do with the cns since the spinal cord runs through the spine. Not really sure if that is what you are referring to or if there is something else that you have found out about.
  • thoracic spine painthoracic spine pain Posts: 566
    edited 06/19/2013 - 9:58 PM
    Having a look at a dermatone chardt - seeing my T4 which is supposed to be taking over from my crushed T5leads to the Apex of Axila which has always hurt.What type of injections and what is RFA?
  • we have spoken about this before. We both have the same injury (more or less) and got it the same violent way. I did not immediately have kyphoplasty injected into the compressed vertebrae and became kyphotic/slighty hunch backed in that area. Besides being aesthetically displeasing, it also cause spinal cord compression symptoms and that forced me into surgery. If your T5 is severely wedged, then my avatar picture is more or less what you will look like on the inside should you have surgery. 1 year and 3 months later, I feel like I am finally recovering to the point I can do things besides crawl home into bed by 7pm every day, but that list is still very very short and always will be. Even with surgery, I cannot predict what will work for me one day and not the next. Rather than having 1-2 ok days a week, I have about 3 so I suppose I should not complain. My surgery was done posteriorly so I did not have the lung pain and some of the other symptoms the folks who got the anterior approach had. However, I still have muscle spasms and chronic pain. I would say I am about 35-40% of what I used to be. It's a giant shyte sandwich my friend.
  • thoracic spine painthoracic spine pain Posts: 566
    edited 06/23/2013 - 8:39 PM
    I am seeing a surgeon who specialises in thoracic surgery next month. My pain levels never went down even with opoids and muscle relaxants. I have been seeing a physio who is putting my T4 back into place so that is giving me the best relief I have had since the accident.

    I have been in a living nightmare for 7 years so even one good day would be a blessing. I am scared as there are so many people with failed surgeries, or surgeries that seem to go Ok for a while and then they are back to where they started or worse.

    If this improved your pain levels I should think about it. I haven't got any of the other symptoms like breathing or tingling just incessant pain. My MRI's are so weird I look like I should be bent over but am not, so it's not about what I look like.

    I look normal except one shoulder is much higher than the other and I wear orthotics on my right foot which keeps my hips at an even level. Maybe thats causing me the pain by standing up straight - cause on the inside I sure am not. Thank you for replying. I was having a very bad pain day that day.
  • Have had an ESI in my shoulder , thought that had made a difference until the anesthetic wore off. Have not had a discogram or a RFA, never been offered them.Have had so many MRI's but they were all lying down and can't see the point of taking MRI's while I'm in a prone postion as it doesn't seem to spot the ones that are out. I think they look at how severely crushed my T5 is - expect that to be responsible for all the pain.I will take a print out of this to the surgeon next week and ask him to follow up.

    The surgeon I am going to was on this site so hope he reads some of the posts - and from the Dr rating site. My GP said to chose my own specialist and would write a refferal to whoever I chose.whoever I chose.

    f you have read some other posts I am now going to a physio who has put my T4 back into alignment, still pops out sometimes, like today but normally as it has been in place for around 4 weeks, I can put it back in, just not tonight for some reason - did a fair bit of driving today which aggravates my spine.

    Realising the vertabrae above try to take over from the damaged ones below has helped my pain considerably.Big light bulb moment for me.

    Everything is now taped back into the right place including my shoulder which was also badly damaged and has been pulling my T4 out of place, my muscles are also spasming and my ribs seem to want to keep my T4 in the wrong place but this is the first time that something has lasted more than a week.

    I will heed your advice - thank you - and will ask about a discogram, ESI's and RFA - thank you for explaining what they mean.

    Don't want to croak it during a wrong operation. Don't really want to croak it during the right operation either. Ha ha ha.
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