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My IPG is not anchored and floats up my vertebrae. What do I do?

yedwardsyyedwards Posts: 2
edited 07/11/2013 - 6:40 AM in Neck Pain: Cervical
I have a SPC for relief of pain in my cervical spine and right shoulder. This pain has been chronic since my early 20's. I was involved in a pretty horrific accident in which I was basically left for dead. Anyway, I've had a fusion in my C4 and C5 which ultimately lead to more herniated discs. I am now in my late 30's and just went through the whole series for the placement of the SCS. I do have a little relief of pain, however, I do have one problem and I can't find anyone (including doctors, medical supplies stores, or even the manufacturer of product hasn't not answered me) that knows what I'm talking about which led me to this forum.

To make a long story short, while recovering from the final surgery of the implant (April 2013), I had a feeling that something bad happened internally. It's hard to describe the pain that occured on multiple occasions, by simply stretching when first awakening (which is something that is very hard not to do especially when you need it and are half asleep). Anyway, a few weeks ago, I was driving to work and it felt like something metal was stuck inside my shirt preventing me from bending my back. I reached back and I couldn't get a full grasp of it, it was somehow stuck to my back. Then I realized that it was my IPG. It had gotten out of the pocket that was previously dug out of my flank area and through the canal that was supposedly sutured shut (that was the pain I was previously feeling, the internal sutures had ripped open allowing the IPG to move through the canal and up my spinal cord). I panicked, called my doctor, and they told me to come in the next day. I did not want to go through the whole day and night with my IPG sitting right on my vertebrae so I went home at lunch and had my boyfriend slide it down my vertebrae with his thumb (it was about half way up my back), then push it through the canal and into the pocket in my left flank region. The doctor suggested I wear a hernia belt to try to keep it in place since I did not want to have another surgery. The last procedure was a nightmare because my body did not want to absorb the anesthesia so therefore, I am now traumatized for having to have surgery while still feeling everything they did. But...I don't see myself wearing a hernia belt for the rest of my life. I have to now move my IPG approximately 2 to 3 times every night during the middle of the night which feels very strange feeling and a little painful and I am afraid it will end up breaking the leads and then there will be more of a problem. Anyway, I just need to know if anyone else has had this happen and if so, are there any other options than going in to close up the canal again?
Thanks!
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  • LizLiz Posts: 7,910
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • bmbutlerbbmbutler Posts: 90
    edited 07/11/2013 - 8:55 AM
    Please call your surgeon
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