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Hi everyone! I just joined this forum to help others out, give support and so on.
I was diagnosed with Infantile Idiopathic Kyphoscoliosis at 18 months old, with curves of 60(kypho) and 67(scoli) from roughly C4 to L3
I was given a cast to wear for a few months, which reduced my scoli curve to 60
I was then given a brace to wear, which didn't work and shot my curve up to 72.
I then underwent my first surgery in August 1999, just 3 years old, in which two titanium rods were placed either side of my spine to help straighten it out. The two rods would be lengthened every 6-9 months which would allow me to grow a few centimetres.
From the ages of 3-17 (current age) I have undergone 25 surgeries, including emergency operations and costoplasty (thoracoplasty) to reduce the rib hump.

As you can see, I've gone through a lot over the years, and quite experienced with different treatments, surgeries and so on.
And therefore hope I can offer a lot of help within the forums!
Infantile Idiopathic Kyphoscoliosis patient.


  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
    Here are just some of the highlights:

    - Detailed medical libraries of Articles and Videos that address almost every Spinal Conditions and Treatment

    - The Wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - Under the Resource tab, there is a section Doctor Advice Health Center which can be invaluable.

    - As a bonus, Spine-Health provides these patient forums. Here is where you can meet thousands of other people who understand and can relate to your situation. You will soon become part of the Spiney family who provide comfort and the advantages of a Support System. You are now part of this family that is approximately 20,600 International members and growing daily.

    - It is very important to understand the Forum Rules to make sure all of your posts do not violate any of the rules.

    - As a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. You should read Forum FAQ

    Here are some you should take a look at:
    Read before you post
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    All of this will help make your threads better and improve the times and quality of responses you will receive.

    If you have any questions or need assistance, you can use the Private Message facility to contact any one of the Moderators on my team:






    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery

  • Welcome to Spine Health.

    Wow! I am in awe of you. :-)
    You have been through so much, and from such a young age.
    When facing my spinal surgeries and the days of feeling fed up during the recovery, I would think about children/teenagers who had needed surgery for scoliosis and that would make me feel that I could cope with what I had to face.

    You have had much more to face than most spinal patients.
    How are you feeling now, at still such a young age of 17?

    You are very welcome here and I know that you will give others the courage to face their spinal surgeries.
    I hope that we will be able to help and support you too. :-)
  • Welcome! Glad you found us. I hope you are enjoying your teen age years... 25 surgeries... that's rough! Best of luck to you.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
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