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Spinal cord stim problems

anbot30aanbot30 Posts: 1
edited 08/05/2013 - 6:11 PM in Spinal Cord Stimulation
I just received the new spinal cord stimulator that is suppose to mri approved a few days ago.I was the first in the US to receive it, but have had nothing but miserable pain. I have had 7 prior lumbar surgeries, and even with those the pain was nothing like this. The doctor doesn't seem to care about my pain, and I don't know what to do now. I was told that this device would be exactly what I need because with all my problems( degenerative disc, multiple herniations etc.) after I woke up from surgery I had severe weakness in my right leg not able to stand without it buckling. the dr explained it was because of the numbing meds and it would go away in a few hours. well it didnt so I went to ER and was admitted for an mri, but at that time was told the device was "conditionally" approved for mri so theycouldn't do it. the did ct scan and said it was inflammation. 5 days later im still suffering with severe nerve pain. im looking for anyone that can relate or has any advice!!! I spoke with dr office today and they still seem to think it'll go away on it's own, but with my history im not so convinced.


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • put back to the manufacturer, call them
  • RickilalasRRickilalas Posts: 559
    edited 08/23/2013 - 7:28 PM
    How was the unit implanted. Were leads placed inside the spinal canal.
    If they did laminectomys it takes a week to get over the pain.
    The doctors really under play the amount of pain in this surgery.
    I had four laminectomys and spent five days in bed. I could not move.
    What unit did you get. Make (edit to remove inappropriate language) sure your leads are MRI ok also
    If they heat up they can do some damage. Some older units were OK for brain MRIs
    but even they had to be done on certain MRIs only.

  • I'm getting my perm. Stimulater placed on the 23 of august. My dr uses the st judes stimulater rechargeable. Getting a little nervous hearing all the problems people are having. On the other hand a couple friends have good words on it.
  • I get my trial installed this morning and I'm praying for the best. Will let you all know this afternoon. Boston Scientific latest and greatest Spectra.
  • yes please keep us posted....just had my trial with the St. Jude....it comes out today....had wonderful results...thank the good Lord.....I know the surgery for the implant will be hard I am just scared and praying that "This too shall Pass".
  • I really recommend every read Kathy's journal from last year. Invaluable tips and info. I just picked up my post op rx's and hope to be in surgery next week or the next. Ive been reading this site for a year since my trial. I was really scared of the surgery. Long story I was laid off,very depressed, had to have extensive dental work in May till just now....so Im ready! I highly recommend making the rolled pillows for each side of spine as Kathy did. I just finished and can see how it will help. Im cervical, Medtronic non floating leads not paddles. Battery goes in at bra line? Good luck! Keep us posted and really arrow way back and read!
  • From the programming on the table to this very minute I knew this IS my answer. This has been such a relief I was overcome with tears as we walked (and my wife pointed out, WALKED, not limped to the car). I can't wait for the permanent! A little pain in my upper back but presumed to be the lead/surgical type pain, but I have my legs back!!
  • 64pvolvo1800664pvolvo1800 Posts: 250
    edited 09/04/2013 - 12:08 AM
    Well, my trial aborted after 24 hours due to a pulled lead and blood, but it was a raging success!
    I'm getting my MRI tomorrow and hopefully my perm paddles and Boston Spectra on the 26/27th.
    I can't wait. My body knows what's happening and has a rage on right now.

    Did anybody else have intense acute pain between the trial and the perm? I'm wondering if it was aggravated and if so, will this also mean that it will be worse when the stim is off?
  • I'm sorry that the trial ended so quickly for you, and yes, I do believe that there have been others who had an increase in pain once the temporary unit was gone. I'm sure that others will come in and chime in with their experiences..
    Good luck and hopefully, they will get your permanent unit soon.
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