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At last after 8 years a diagnosis Ya hoo

Just thought I would post this as at last I have a specialist who has told me the truth and not just dismissed me because they can't operate. My new surgeon ordered bone scans. My T5 80% wedge crush has healed in a really bad place. They cannot operate as the pedicles above and below T5 are not strong enough to hold the screws in place. The spinal cord is too thin and close to the vertebrae around T5 and if they operate I would likely be paralysed. There are also many vital organs around T5 and arteries etc. They do not have good outcomes from thoracic surgery at the T5 level. I will have pain from this for the rest of my life.

He also told me if it was lumbar or cervical they could operate as there is more room around the spinal cord at these levels and the pedicles can take the screws.

The sad thing, he told me, about mine is if they had treated it properly in the first place it would have healed in a better place and the pain wouldn't be so bad.

I wish specialists would understand it's better to tell the truth and not just dismiss people without an explanation, becuase they can't operate. Most of them have been incredibly arrogant. If they explained why, I would have known this long ago and organised my life accordingly.

I have a couple of degrees so if they acknowledged that and explained properly, I could have a pension from work after 30 years of putting my life and soul into my job and not finally given in because of the pain. I would have known that the pain would not improve, would likely get worse, and would have hung around through all the administration to receive a work pension which I paid for anyway.

The good news is my shoulder is still inflamed and has active pathology after 8 years, so they can operate on it and hopefully that should ease some of the pain. I have been to a myriad of shoulder specialists and not one of them ordered the correct tests.

So everything from the very start has been messed up.

This guy is in Australia, trained in the UK, so if anyone has thoracic spine issues in Australia or SE Queensland I can PM you his name. I got his name from this site and from the MD rating site. No wonder his patients love him.

Have a less pain day.


  • well I'm glad they have a solid diagnosis but sorry to hear that there won't be a plan for resolution. Its going to be all about pain management for most of us. I hope you are able to find ways to cope, be happy, and be at peace about it all.

    whats your plan for treatments going forward?
  • I'm going to have the shoulder surgery, keep on at the physio's and work out a pain management plan with my Dr. All I can do really. I will try and find some exercise that doesn't further exacerbate my spine.

    I am also going to try and raise money in Australia for a sitting or standing MRI. There are not any in Queensland and don't think they have any in Australia. I think it's important to have one in Australia as I am sure they would have picked up everything much sooner if the MRI's were weight bearing.

    Also will look at the spine society if they have one here. I'm an educator so might be able to organise conferences and get speakers together about spinal damage, especially thoracic as many specialists don't seem to know much about the thoracic spine. I still have my old contacts and used to organise large conferences so will look. Will lobby for spinal education in schools here as part of the curriculum.

    Also will try and start lobbying to have a safety component included in Motor Bike license classes, where they teach you the safest way to fall, there is currently no safety component in classes for motorbike licenses for new riders.

    There are a lot of other things I can do as there doesn't seem to be much money going into spinal, central nervous system, research in Australia.

    So my real plan is to keep myself as busy as possible so I can cope with the pain.

    That's the breaks in a big city. Just have to live with the pain.
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