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Taking life for granted

Hello, Two years ago I would've never thought where I am today. I have always been a very hard-working energetic person that like to do things and have fun and for what I tell everybody today is don't take life for granted because you don't know what you have until it's gone. I just turned 40 years old and I've had four surgeries in the last year and a half and I am having my fifth surgery Next week. I have a four-year-old"-year-old and a 13-year-old and I'm in a situation that I never thought I would ever be in. Not able to do anything with my kids, walk around the mall, throw a ball, it's very rough and difficult for me as I walk with either a walker or a cane Depending on how I am feeling that day. I never realized mentally how hard something like this would be as for myself as it its as much mentally as it is physically especially for somebody like me that was always On the go. I had my first back surgery last January 2012 on the lumbar L5-S1 laminectomy. I then had a reoccurrence where I had to have the surgery redone in October 2012 and at that time was having several more issues due to a work-related incident. I was than having several issues were my leg on the right side was giving out and I was falling a lot and I also was having Problems urinating. I was also having pain throughout my neck down my cervical into my left rear Shoulder Blade down my arm all the way into my left hand. I have had several issues not being able to urinate and Have had to wear a catheter for a period of time, and now having to catheterize myself at times and when I am able to urinate it's only when I'm sitting down. I had a morphine pump implanted in March of this year and I am currently being treated with fentynal in my pump. A week after the pain pump was implanted I had an anterior cervical discectomy with fusion and instrumentation at my C4 , C5, C6, T1. I have been increased on my fentanyl every week since the pump with no pain relief
to find out I have to go in next week due to my catheter Is not in place. I'm on several oral medications along with the pump. There is nothing easy about this and I feel for anybody that has to deal with pain issues of any form.


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    I'm sorry for all that you are going through. We have surgery support forums and our pain management forum which contains posts regarding the pain pump might be of interest to you. We are all aware of how difficult spine problems can be and the length of time that it takes to recover from them. Hang in there, ( I imagine you are tired of hearing that, ) but hopefully once they reposition your catheter for the pump, your pain relief will get better. Increasing the dosage at this point, until the catheter is repaired is pointless, since it is not being delivered intrathecally.
    Again I'm truly sorry.
  • jlrfryejjlrfrye ohioPosts: 1,110
    I read your post and it somewhat reminds me of myself. I just finished surgery number 8. There is light at the end of the tunnel trust me. You will get there it just takes time and patience. Patience was never one of my best virtues. I have had 5 cervical surgeries and 3 lumbar. I also went thru the pain pump trial and ended up with a infection that bought me a year on antibiotics. A year of antibiotics that made me sick daily and pain that was uncontrollable. Today I am 3 weeks post op of lumbar fusion. infection free for now and my pain is greatly reduced. Have faith in your doctors, they will come up with a plan to make life more bearable. Good luck and keep us posted
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