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Help! Have any of you experienced this?

Hi everyone, I am new to this forum (I am from Australia) but have been watching it for years now. I am wondering if someone can help me with some of the symptoms that I am experiencing right now. A brief history of my situation:

I have a long-standing L5S1 disc herniation, it happened in 2010. Originally the pain was on the right-sided buttock and down to my thigh. It left me with numbness on the top of my upper #R thigh as well weakness of the left foot (could not toe raise initially, but now I can) and was diagnosed by a neuro-surgeon with a very large L5S1 disc herniation on MRI in November 2010. We discussed having a discectomy, but did not proceed as my pain level was reduced. My pain symptoms have fluctuated but have never gone away.

May this year, I experienced a moderate pain and burning sensation on my #L leg, behind #L knee and heels pain. I had 6 sessions of physio and 2 sessions of clinical Pilates. the pain and burning sensation had reduced significantly, however, I had neuropathic symptoms - especially on the back of my #R thigh where I felt a bristle brush was pressing on it (the numb area???) and this is now spread to my #L thigh (inner as well) and the weird sensation of cold water droplets splashing on my legs. However, severity of these symptoms change from time to time and shift to different places on my things. When I sit, I feel like I am sitting on sand paper!!!!

I then saw another neuro in June and had a second MRI. It showed that the posterior disc bulging and apparent extrusion had improved significantly. She told me "she doesn't know why I am having these symptoms, perhaps my L5and S1 disc is not stable" she suggested surgery to take the disc out and replace it (she didn't mention the name of the surgery). When questioned if the surgery will get rid of these symptoms, she said "I can't guarantee your symptoms will improve as you don't seem to have leg pain".

However I now have new symptoms ie sensation of a bristle brush sitting on my upper #R leg, the sensation alters from time to time, this has now spread to my #L upper-thigh with less degree. . I also have patches of mild burning session in both legs and #L foot sole (It feels like a low grade electrical current moving through) and on top of my toes. In the last 2 weeks, I started feeling a pricking sensation (like hundreds of pins & needles) on the edge of my both upper thighs and buttocks when I am hot and walking.

I have tried physio, shiatsu, clinical Pilates and acupuncture to no avail. All the physical examinations from the neuro and physic ie leg raise, toe/heel raise didn't produce any pain. Physiotherapist believes it is caused by bad / overcompensated posture, hence is this a muscular problem?? After trying these things and having these symptoms for 4 months, I feel very depressed and there doesn't seems to be an answer. Some people suggested I see a neurologist, I know its a long story but I would really appreciate some feedback or someone I can talk to Please!

Thanking you in advance. Yu Ping (my first name).


  • Have you had blood work done to rule out other possible issues you might have? Also, anxiety can make symptoms worse. When I have had terrible pain, I start to have other symptoms you are describing. Sometimes the nervous system can get very excited and I have noticed it with my condition. I would not have surgery if your neuro "suggests surgery" without further testing to verify that the SI joint is not stable. These are just some things to think about and you should always get a second or third opinion.
    2011 ACDF C5-6 for Spondylosis with Myleopathy
    2012 L4-5 herniated disc and hernated disc at C4/5 2013 Taking Amitriptyline for headaches
  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
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    All of this will help make your threads better and improve the times and quality of responses you will receive.

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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