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What do I do, so tired of being miserable

I have been seeing a Rheumatologist for 2 years now complaining of neck and joint pain accompanied by constant fatigue and headaches. I was referred to that department due to a positive ANA found during bloodtests. In June I went in again with severe neck pain only in the back of my neck specifically at the base of my skull. This is pretty intolerable and debilitating. I just turned 40 in August and have had no injury to have caused any of my issues and pains. An MRI was ordered of my cervical spine and the results are as follows.:

Findings: There is a mild reversal of the normal cervical lordosis centered at C5-6 with very slight retrolisthesis of C5 on C6. Vertebral body heights are preserved. No abnormal marrow signal is seen. The cervical cord maintains normal signal and morphology. Visualized posterior fossa structures are unremarkable. Multilevel degenerative changes will be described below.
C1-2: [No significant spinal canal stenosis.]
C2-3: [No significant spinal canal stenosis.]
C3-4: [No significant spinal canal stenosis.]
C4-5: [Mild disc osteophyte complex slightly eccentric to the right. No significant spinal canal or foraminal stenosis.]
C5-6: [Broad-based disc osteophyte complex moderately narrowing the ventral subarachnoid space and nearly contacting the ventral cord. No cord compression or significan foraminal stenosis.
C6-7: [Minimal disc osteophyte complex centrally without significant spinal canal or foraminal stenosis.]
C7-T1: [Moderate facet degenerative changes. No significant spinal canal or foraminal stenosis.}

I feel helpless and like my doctor doesn't understand anything that I am feeling. I have 4 kids that I am trying to raise and am so tired and impaired that I am having troubles being the mother that I am used to being.


  • RangerRRanger on da rangePosts: 805
    hi rachel and welcome.
    Don't be afraid to get at least two more opinions from spine specialists. I never did until others here informed me it's the right thing to do. One of the many pieces of great advice I have absorbed here.
    There is so many avenues to explore as far as pain relief go so be your own advocate, there is a lot to learn, and make your best decision what works for you.
    Take care,
  • Thank you, gonna make some appointments on Monday. I appreciate you taking the time to read my post and respond. Have a wonderful weekend!
  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
    Here are just some of the highlights:

    - Detailed medical libraries of Articles and Videos that address almost every Spinal Conditions and Treatment

    - The Wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - Under the Resource tab, there is a section Doctor Advice Health Center which can be invaluable.

    - As a bonus, Spine-Health provides these patient forums. Here is where you can meet thousands of other people who understand and can relate to your situation. You will soon become part of the Spiney family who provide comfort and the advantages of a Support System. You are now part of this family that is approximately 20,600 International members and growing daily.

    - It is very important to understand the Forum Rules to make sure all of your posts do not violate any of the rules.

    - As a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. You should read Forum FAQ

    Here are some you should take a look at:
    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    If you have any questions or need assistance, you can use the Private Message facility to contact any one of the Moderators on my team:






    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I know exactly what you mean about not being the mom you want to be. I have a 23yo- not too worried about him, but I also have a 8 yo, and feel like I am shortchanging him. Sometimes I am so grumpy from pain, and I get mad at him. Poor little guy, I have told him i just dont feel good. But I still don't do as much with him as I wish I could. Guilty mom!
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