Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Getting Md's and Family to understand your pain

As a long time chronic pain sufferer, DDD, fibromyalgia, Ptsd, and years of acupuncture (never lasts more than a day),
years of Physical therapy, some ok, but cannot cure the problem. ice packs, heat packs, stretching, breathing techniques, better sleeping patterns. And had to be put on permanent disability to deal with this mess. I call my body and mind.
Here is my thought on dealing with this every day.
In gratitude I say, if you put your mind to it, you can find ways to improve your outlook, even if you are being treated for manic-depressive on top of all the physical agony.
I have decided that studying, Zen techniques, I have not allowed the pain to keep me from fully enjoying some of my favorite things.here is how you can do it. Start with Acceptance and work you way to happiness.
1) You admit you no longer can do what you did before
2) You take authority over your own body- No doctor should have complete control over your well being ( that is your job)
3) understand that most surgeons and physicians are in it for the money, so get that understanding now.
4) When you do get a test done, wait for the results right there, and ask for a copy of your MRI, PET, or X-ray from the technician, they almost always will give you a copy of the exam (FREE) but you have to ask, and wait for it from them.
Never assume your MD or whomever ordered the test, including blood work will tell you what you need to know, GET YOUR COPIES. If you wait, you will have to pay them. WHY WAIT?
5) Eat better, I realized when I cut out sugars, heavy carbs, and meats, and ate more fruits and vegetables I feel a lot better. you must boost your immune system to feel better.
6) Make sure your family knows, they need to take care of you now, not the other way around. if you can do it yourself, then do it. ( I'm still battling that one) some of my family don't get it, so they are at my choice, not able to come around much.
7) I now meditate, relax, create floral designs and jewelry, have friends by often to keep my spirits up, and always carry a pillow. So between surgeries, I do what I can, but always do something you love in a downscaled way, at least you will love it, and your life better, while you suffer. I have wind chimes, binaural support, incense, sensory support, candles, soothing atmosphere support, and internet. Remember your soul!!!! And set good boundaries, or people won't know, as you look good on the outside, and are suffering on the inside. It's all up to you. Back to my flowers now. Peace to all, seek support. But be your own best friend. A fellow sufferer.


  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
    Here are just some of the highlights:

    - Detailed medical libraries of Articles and Videos that address almost every Spinal Conditions and Treatment

    - The Wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - Under the Resource tab, there is a section Doctor Advice Health Center which can be invaluable.

    - As a bonus, Spine-Health provides these patient forums. Here is where you can meet thousands of other people who understand and can relate to your situation. You will soon become part of the Spiney family who provide comfort and the advantages of a Support System. You are now part of this family that is approximately 20,600 International members and growing daily.

    - It is very important to understand the Forum Rules to make sure all of your posts do not violate any of the rules.

    - As a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. You should read Forum FAQ

    Here are some you should take a look at:
    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    If you have any questions or need assistance, you can use the Private Message facility to contact any one of the Moderators on my team:






    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • edpharmdeedpharmd Posts: 19
    edited 10/17/2013 - 4:31 PM
    Thank you Abigstepup! I agree 100%
    Make it a point everyday, even those really tough ones where you are living minute-by-minute, to DO what you can, ENJOY what you can, BE GLAD that you have accomplished what you could, and ACCEPT your new 'normal'. (I love the part about the pillow...I thought I was the only one who carries one into restaurants!!)
Sign In or Register to comment.