I'm 49 and have been diagnosed with Tethered Cord Syndrome. Not many doctors are familiar with this condition.
I was originally diagnosed with Sacoilliac Joint Syndrome (as the symptoms were similiar) until I had an MRI in which the radiologist flagged for "tethered cord" to follow up with urodynamic test for confirmation.
When they see thickening filum terminale in your MRI, this is a sign. Included, low back pain, pain in both legs, and tailbone pain.
I've tried NSAID's, injections, physical therapy, swim therapy, nerve pills and nothing helps. Going to the neurosurgeon tomorrow to discuss surgery as I've had chronic pain for 8 months and I feel I can't bare much more.
Anybody here have the same condition? Had surgery?
UPDATE - SEPTEMBER 2014
I had surgery....recovered 100% with the exception of continued frequent urination. Pain was completely gone after 2-3 months. However, symptoms are now returning. Pain scale 5 of 1-10. MRI came back with Low Lying Conus at MID L3 and thickened filum terminale. Going back for Uradynamic testing next week to confirm retethering.
HAS ANYONE HAD RETETHERING AND IF SO, HOW SOON DID IT HAPPEN AND DO YOU KNOW WHY IT RETETHERS?