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Horners Syndrome


I had cervical spinal surgery 3 months ago now and have ended up with Horner's Syndrome. I was given an MRI to see if I had a bleed on the brain but that came back all good (which we were relieved at). Originally I was told that my right droopy eye would get better in weeks.
My symptoms are droopy eyelid, no pupil dilation and blurred vision from that eye and headaches, dull ache around the eye and sensitive to light, which I have to wear sunglasses all the time.
He told me to go for an eye check before coming back to see him for my 6 week check. Which I did and was sent straight to the eye infirmary to see a specialist. I was given 2.5 hours of test even the cocaine in my eyes to try and stimulate the pupil but nothing. I was diagnosed then with Horner's Syndrome - but told not to research it cos it makes for scary reading.....
I was told I had to go for an CT scan on my neck to see how bad the damage was.
I work full time as an Accounts Manager and need my eyes for my job and when I went for my 6 week check to see the neuro-surgeon, I told him about the eye specialist and told him I need to be sent for a CT scan but he insisted he wasn't going to send me for one cos it was a waste of money and time and he said it would take 6 - 9 months to heal as its just nerve damage..... Bearing in mind I had my surgery done Privately and was covered for the CT scan under my insurance and wasn't costing anything to the NHS but he wouldn't authorise it (which I found strange).
When I asked him about work, he told me to take extra time off work, which I can't afford to do. He did say if it had not changed any in 6 months to go back but was signing me off for my neck surgery. Which is another story.
I have now been for my CT scan on the NHS as the eye specialist insisted I needed one and am waiting for the results but they take there time so no appointment date has yet been set for my results.
None of my symptoms have got any better.
My boss has been brilliant... He has got my a bigger screen and an A4 size magnifier and I'm also doing my Degree and the college have even blown all my paperwork up to A3 so I can read it.
This has had a great impact on my life and don't see the light at the end of the tunnel. Someone please give me some positive news on this.

This is my 3rd spinal operation I have had 2 lumbar ops before this and need a hip replacement but I'm scared of having cos I don't need any more complications in my life.


  • sandisandi Posts: 6,343
    edited 10/03/2013 - 8:01 AM
    I'm truly sorry for what you are going through.......I don't know what recourse you have in the UK regarding doctors and surgical problems but if I were you , I might find out... Is the surgeon who refused to give you the order for a CT scan the same one who did your surgery?
    If he is, please, find another surgeon as soon as possible.......any doctor who would be told that information and not take action to protect his patient is not someone that you want to continue to see.
    Listen to the eye doctor and ask him for another recommendation or better yet, your primary care doctor.......
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