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Total fusion C5-S1 Anybody else?

Ray-RayRRay-Ray Posts: 1
edited 10/04/2013 - 9:49 AM in Back Surgery and Neck Surgery
So, in 87 I had a ant/post spinal fusion with a Harrington rod placed. C-5 L1. In 12/12 I had to have L2-L4 fused and 2 months after surgery my back started to hurt again. After months of trying to figure out what's wrong they have determined that I have a grade 4 tear in L5-S1 and a bad bulge in L4-L5. I will be getting those fused in about a month to fix the pain. I'm curious if any body has had a total fusion like this? Trying to figure out what my quality of life will be? Can I still get around? I've extremely active but this past year has been no fun! I want the pain to go away but I also want to have some sort of normal life after the fusion.


  • I am sorry that I can't answer your question but I wanted to welcome you to Spine Health.

    I can't think of a member who has so much of their spine fused. Hopefully someone will be along who does have a lot of their spine fused who will share their experience with you.

    How much movement do you have at the moment? I would imagine that you can't twist much and that your bending is limited.

    I would advise you to be careful after surgery that you don't over stress your knees. I caused a real flare in mine after having just one level (L4/5) of my back fused because I was kneeling to avoid bending my back.
    Do get yourself a grabber stick. I actually bought one and borrowed two more so that I had one in my bedroom, one in the bathroom and one downstairs.

    I hope that you will get some helpful answers.
    Do ask if you have any other questions and let us know when you have a date for surgery.

  • I don't have that much fused... I do have most of my thoracic and all of my lumbar fused. My surgeon told me to expect to always walk differently after having a total lumbar fusion. I had many of your same fears. I have to say, although the first few months were well.... we'll go with difficult, I did heal. If you didn't know me, you wouldn't know I even have back issues. I walk very normal. I also bend just fine (obviously from the top of the leg). I have no trouble getting things off the floor etc. now, though I certainly don't recommend you trying to do so until you have been properly "trained" through PT. Best of luck to you.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
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