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Can't Live Like This Anymore

Hi there. I'm a male and I'm 16 years old. I've been dealing with so much pain everyday for over a year now and I don't know what to do anymore and I wanna share my story to see if anyone has any suggestions. So, it all started about a little over a year ago. I would always get headaches like every other day and I was used it it mostly because it was from dehydration and spending too much time on the computer and all that. But after that, I've started getting aches in the bottom-back of my head (the base). It was unusual because I've never got headaches there but I thought it would be a one-time thing and would go away. It wen't away the next day but came back after that, just like my normal headaches, they'd come and go every other day. It started progressing to me getting these aches in the back of my head everyday even without my normal headache. I noticed every time I turned my head in any direction, I would hear cracks and pops in the back of my head/neck area and it felt like it released all this pressure/tension when I did it for literally 1 second and then the pain would come back. After that, it slowly progressed to other parts of my body. First my neck, then my shoulders, arms, fingers, spine, legs, pretty much every single joint in my body, and this isn't just like a pain where you crack your neck and it's gone, it is ALWAYS there and the base of my head/neck, fingers, knees and other joints crack/pop probably over 100 times a day whether it's just by me stretching or simply by me turning my head around.

I've finally convinced my mom to take my to our family doctor and he said he didn't know what was going on so he made me get x-rays and those showed up fine so he told me to go see a neurologist. The appointment wait took about 3 months until I finally got to see the neuro. I told him everything I said above and he told me he wants me to get an MRI scan to make sure I don't have something bad and then to come back to him. The waiting line for an MRI scan is also 3 months and then another 2 months to go back to my neurologist to show him my results. My appointment for the MRI is in 1 month now and neurologist is 2 months now and I literally feel like I cannot wait any longer. I've tried contacting them and get an earlier date but they have no room.

This pain is LITERALLY taking over my life. I can't do any normal things a 16 year old boy is supposed to do- rather I can't do anything a normal human can do! When I go shopping now with friends/family, after 2 hours, my head feels lightweight, my shoulders feel like they have 20 pound bricks on both sides weighing my down, and my legs feel like they are going to collapse. I literally wake up with pain all over my body (worst at the back of my head, where this all started from) and experience it throughout the whole day. I changed the way I sleep, got a therapeutic pillow, changed my posture in how I walk, sit, I literally tried EVERYTHING, but nothing works. I started even going to sleep early and catch myself just laying in bed for 3-4 hours literally aching in pain. I can't focus in school, I can't do anything. It's making me so depressed that I literally cry every day. Does anybody know what this could be? Please help me, I can't live like this anymore.


  • Hi ...it's hard to find ur way around this website at first. U had a few replys under the chronic pain forum. Me included. But please ask ur parent to insist on ur doc getting ur MRI appoint ASAP...that u r too anxious and in pain to wait 3 months for this to happen. If ur parent can be pushy, that's what it will require, calling the doc twice a day to say u cannot wait!! The cancellation list is great but so is a parent insisting on speaking to the doc who has the power to have u in that MRI quickly. Good luck, thinking of u. Alsmom
  • When you got your xrays done, did you get one where you had to have your mouth wide open? I have had neck symptoms my entire life, but it wasn't until I was 16 that I started to experience chronic pain. My doctors ignored me saying it was stress among other things. When I was 18 I was in a car accident and diagnosed with Os Odontoideum, which my doctors still ignored saying they didn't believe the diagnosis. I decided to just live with the pain and other symptoms and became very jaded by doctors. I was having severe pain and stiffness in my neck and shoulders, feeling like a "bobblehead" as if I had no support for my head, I heard the bones when I would move my head, numbness in my arms, etc. I finally went back to a new doctor, got more xrays and was referred to a surgeon. I had two surgeons refuse to treat me and saw a third surgeon who did a cervical fusion of c1c2 when I was 21.

    What I learned from my experience is that you are your own health advocate. No one else can feel what is going on inside your own body.
  • Hi, I hope everything has worked out as this post is old. If it did not I am going to share a bit of my experience and give you a little advice.
    I began living in chronic pain 10 years ago at the age of 12. It took years before I got a diagnosis of juvenile arthritis. By the time I was 13 I became allergic to NSADs due to the crazy amount my doctor was prescribing me and by the age of 19 I was severely addicted to opiats (not an addictive personality, you just keep having to take more and more for them to work). Got my medical marijuana license as this is the only thing that will work and I am not addicted to. Lyrica also worked wonders for me but became too expensive as my dosages rose over time. At this point I've been given multiple diagnosis and am constantly having new symptoms pile on. I've seen dozens of specialists and tried countless treatments. The only type of doctor that has ever been able to give me real help was a Rheumatologist. I suggest you find one immediately if you don't already have one, work in conjunction with them and a pain management specialist to figure out what is going on with you and the best treatment options. Please remember that while not all people who take opiats becoming "junkies" they are addictive in a sense that you keep having to take more even if its not a "high" you are trying to achieve. Living with pain may seem unbearable but eventually you become sort of used to it, not that it makes it any better, so if you can manage without pain meds try to, because one problem with them is that when they wear off, or you run out, the pain seems much worse than if you just live without them and take tylenol to take the edge off when needed. They can also cause you to further injure yourself as you don't feel pain the way your body is meant to. You are young and so was I when my pain started. The hardest thing is accepting your limitations. It is very depressing and hard to do. Try to find people with similar circumstances so you have someone to talk to. I refused to accept my situation and made my problems worse by doing activities that I shouldn't have, like snowboarding and other high impact sports. Private message me so I can give you my email address if you are still having these problems and would like some support.
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