Hi my name is Angie, I am new to this site, I am 34 and I live in England.
I have had a condition called Hyper-mobility syndrome since the age of 5,
I suffer with chronic pain daily, but as I'm getting older my joints are stiffening up.
I had spinal surgery at 10yrs old , and it was a great success.
I had spondylothesis I, which I believe is a bit unusual, and Doctors and medical students found me very interesting.
I am now suffering awful pain after a fall down the stairs at home.
I believe this is the cause of my pain but my GP ignored me and said it was nothing, I then returned a month later saying my hips hurt.
Fortunately I see a different GP.
I was sent for MRI scans, they showed I had a spinal problem, and pelvic DysplAsia., and flattening of the iliac wings !
II recently see My Rheumatologist after fighting to see her for 3 years, as Gp's always sent me to see a Physio instead,or give me different tablets.
My Rheumatologist looked angry that I had not been sent to her sooner.
She said I need to see a Spinal surgeon ASAP, and a foot surgeon, she has also now asked for a scan on my hips thank goodness.
I am in so much pain, I take Morphine and other tablets but nothing works,I find it painful to sit, or lie, or walk.
I work and wish I didn't as it adds to my pain, but I have to.
I am now experiencing tingling sensations in my back,hands,feet legs,toes and it makes me feel dizzy like I'm going to pass out, why is this please ? It really concerns me.
Many thanks Angie