Just joined. Had chronic pain since '07 from scoliosis/spinal arthritis.
What helps: evidently, nothing, massage sometimes but only for about 24-48 hrs.
What I've tried: everything short of invasive and barbaric procedures like nerve blocking and surgery. Seriously, if you name it I bet i've tried it. Here are some highlights: Did ok on opiates for about a year until i started abusing them. Hate 12 steps, mixed feelings about SMART Recovery etc... Been off opiates (and ambien and lorazepam) for almost four years (and alcohol a little over five). Been of pot a littel over 8 months. Only drugs i use now are green tea (4-5 bags a day, down form 8-9 cups of coffee since about a week ago), tylenol sparingly (tried ibuprofen again recently but digestive problems increased/leaky gut, which is also associated with depression, which is intense lately), small doses of valerian about once a week but think i'm done with that too, vitamin d 4000-6000 IUs a day (but wonder of it's causing arrythmia, also supsect CPAP--see below), low doses of magnesium, zinc, calcium.
What makes it worse?
Suspects: acupuncture at times, physical therapy--been to 6 different ones, although they did get my hyperflexibility right and stretching contraindication
Definites: chiropractors (along with PTs and naturopaths I think they're total quacks); stretching of any kind; moving and paradoxically not moving enough...which is one of my main issues: UNPREDICTABILITY and insidious vicious cycles like: pain "causes" depression, exercise alleviates depression, BUT FOR ME exercise also "causes" pain
Additional: CPAP dependent/severe obstructive apnea as of four or five months ago...in February almost died/hospitalized for 6 days with MRSA based necrotizing pneumonia/golf ball sized "hole"/abcess in lung precipitated by influenza
Education/work: BA Psych, MS Conflict Resolution; unemployed since ,09; government and i supect most docs don't belive i'm disabled...disability case restarted; medical review at Voc. Rehab inconclusive, currently undergoing psych evals and physical capacity evals with them
The Letter to Normals from a Person with Chronic Pain really resonated with me:http://www.spine-health.com/forum/pain/chronic-pain/letter-normals-a-person-chronic-pain
and Therstrom's book The Pain Chronicles which i just started but really like