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adolescent idiopathic scoliosis

My child is 11 and has a 47% lumbar curve, trying bracing, but surgery is probably a must, not sure how I feel about this
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  • LizLiz Posts: 7,883
    edited 10/27/2013 - 4:47 AM
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    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I'm so sorry you are faced with this as the parent. Have you had the genetic testing done? I don't want to over speak because I have not been through this, but I read an article (a couple of years ago so I might have some facts not straight) that they now have a saliva test that can tell if a child has a the genetic marker that indicates if the curve will stop or continue to progress... if a child has a "marginal" curve (which I know 45 has in the past been the cut off that would indicate surgery, so I'd *think* 47 would still be "marginal") and tests negative then there's a strong chance that the curve will not get worse and surgery can be avoided. If it comes back positive then there's a strong chance that the curve will continue to progress and surgery is inevitable. I know if I have to go through this with my child then I'll definitely ask about this test, the in's and outs of it as well as get more than one opinion. Best of luck to you and your child. Keep us updated.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • @LAB1991,

    At 47 degrees, you might be advised surgery but you could probably look at non-surgical options -- exercises, yoga, braces. Look for a good physiotherapist who has experience with scoliosis patients. My daughter had 50+ and was advised by the doctor to see if it progresses and suggested surgery if it goes beyond 70. PT seemed to work for my daughter and the curve has reduced. Wish you good luck.
  • I had the surgery at age 15....I am now 42 and have recently had lumbar fusion surgery. My mom made the tough decision to correct my 43 degree curve when I was younger...I would most likely be crippled now if she had not.
    Susan B.
  • Im 22, had my surgery 9 years ago. I don't remember what my curve was but I know after correcting they could only reduce it to 32 degrees. I am not a typical scoliosis victim. I am extremely muscular. My scoliosis was first caught in November and I had surgery in February. I was having problems breathing. My mom made the correct decision in operating. My only regret was she didn't catch it sooner. If I had been corrected before it got as bad as it did I would be straighter now, and would have less pain. I have often forgot I even have a bad back. I dont restrict myself to any activity. I cheered in high school. If you do decide to operate my only advice is make sure you force her into physical therapy. I fought my mom on it and my damaged/weak muscles are the sorce of all my pain. Best of luck. I hope your daughters curve doesn't increase but if it does, she's gonna be okay.
    Sincerely, Lisa.
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