Please bear with me whilst I rave a little.....
Since Dec 2009, I've had 6 x spinal surgeries. I'm nearly totally fused and I'm looking at having another operation where steel bolts are inserted into my hips and other attachments to support my spine. The life I had went out the window and I'm doing my best to "move forward."
I was taking (according to doctors) dangerously high levels of morphine based pain meds (Oxynorm, MS-Contin, Fentanyl patch etc etc). I was re admitted for a medication detox and now I'm on other meds which does bugger all for my pain, which leads me to my questions, if you will please bear with me.
My surgeon sent me off to a pain management specialist who now regulates my pain meds (the ones that don't work well). He has suggested that when I have a serious pain episode (like when I try and walk around my local shopping centre - the pain increases when I try and walk beyond 50m with my walking stick). The pain management person has suggested that (a) I smoke weed for pain (b) have pleasant thoughts when my pain increases - I'm not joking. (c) push through the pain - yeah, right (d) undertake some program where you are admitted into a rehab facility (for pain management, not drug or alcohol abuse) for 3 weeks of intensive physiotherapy, psychology treatment - some doctors seem to think that back pain is "in your head." The 3 week holiday includes some program where you re-boot your brain???? I've discovered that this person also has prescribed me Endep which is a psychotic drug - what, I'm crazy now too???
My surgeon has told me that I'm not a cure case, but, a maintenance case and pain meds are my friends until I kick the bucket. I'm finding that the pain management doctor to be not particularly helpful.
Has anyone experienced pain specialists? Has this helped you? Should I change doctors, who listen and don't have their own opinions.
My attitude now towards doctors is that unless they have experienced severe spinal issues or back pain, they have no idea as to what we go though. After 6 surgeries, constant pain and immobility issues, my faith in my current doctors is diminishing.
Apologies for the rave, but, when you feel as though you are talking to yourself, you wonder what on hills hat, am I supposed to do??
More titanium steel in me than a modern car.....