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Hi,Newbi here first time

nosuchlogicnnosuchlogic Posts: 8
edited 11/26/2013 - 9:18 PM in Degenerative Disc Disease
Hi everyone,I am a 53 year old woman who does landscaping. Feb 12,2013 I went to get out of bed and both legs buckled under me and was unable to stand or walk for about an hour.But continued to be severely weak.After that I was able to walk slow while holding on to the wall for support.This was all of the sudden.Nine days later, both arms did the same thing.I was not able to stand in a shower for almost 3 months.I had to stop and sit constantly from weakness in my legs and arms The only pain I was experiencing was electric like shocks down both arms when coughing or sneezing.And occasionally I would have lower back pain,but not severe.I had no pain at all in my legs.As of todays date, I have had 2 CTs one with contrast, a brain MRI and a spine MRI, and two XRAYS.And a EMG test.Of all those tests the only thing I have been told that is going on with me is I have mild to moderate Degenerative Disc Disease. I have recovered on my own about 80% of my arm strength.And though my legs are stronger I can walk pretty good.I cannot run though,at all, I can feel my self sliding backwards. Here are my symptoms I experience every day. Both index fingers are almost completely numb,but they still hurt constantly.Both hands also constantly feel spongy,and thick.It is hard to describe. I can barely stand to get them wet. Both index fingers get electric like shock spasms but are mild.So do the tops of my hands. As for my legs,when I first get up they are very tight and stiff feeling and is very hard to walk.But without pain.The minute I sit down if even for a couple minutes,when I stand it is like I start over again and have to make them move to limber them up.For the most part,the more I make myself walk, the weaker I become.Yet the longer I sit,the harder it is to stand. Also I wake just about every day with low back pain, but once I sit up and before I stand, the area of my back just below my arms and down to my hips my back goes numb. This numbness happens several times each day.If I am lying in bed and I go to stretch,both legs bend at the knee,my heels try to push forward,and my toes bend upwards and are splayed out.I have also been getting cramps in my legs at night when there was no pain before.And I have been hurting myself,like the tendons right above my heels hurt badly at times.I have an appointment on Dec. 2 to have a MRI done of my neck.This is the only place they have not tested. Can all of this be happening because of DDD? I am so frustrated.Any response would be most appreciated.Thank you.I am now having spasms on the tops of my feet.And touching any part of the tops of arms causes pain to index fingers.Electric like spasms are also happening again to both arms. Is this diagnosis taking too long?


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Ron DiLauro


    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Cervical spine MRI w/o contrast.FINDINGS: There is evidence of multilevel degenerative disk disease involving c-3 thru c-6.The canal and the neural formina are patent from skull base to c-3 At c-3-c-4 level there is mild left-sided neural foraminal stenosis. MPRESSION:1-MULTILEVEL DEGENERATIVE DISK DISEASE NOTED FRM C-3 TO C-7. 2-SEVERE SPINAL CANAL STENOSIS AT C-5 N C-6. WITH MODERATE TO SEVERE BILATERAL NEURAL FORMINAL STENOSIS. 3-MODERATE C-6 C-7 NEURAL FORMINAL STENOSIS. 4- SPINAL CORD DEFORMITY AND PROBABLE MYELOMALACIA AT C-5 AND C-6 LEVEL Therapy will nt be made availabe to me unitl sometime around June next year.What should I do in the mean time?
  • sandisandi Posts: 6,343
    edited 12/06/2013 - 10:06 AM
    findings. Those need to be discussed with your surgeon.
    However, it might be worthwhile to see about physical therapy and to see a pain management doctor and surgeon in the meantime to discuss what you can do regarding your MRI results.
  • My medical is covered by a county program.I have no surgeon.All I have is a PA.Because my coverage is being switched to medi-cal as of the first of the year, I feel I have fallen into a crack between these changes that are being made and will become just a statistic.I was told May a referral would be submitted to begin therapy that is mandatory but the PA does not feel I would benefit from it.And has not even suggested a neck brace or anything.It has become a waiting game.It takes 30 days for that and then 30 more days to get an appointment.I have had at times some pretty bad pain but mostly weakness and inability to walk very well.I am getting more weaker daily it seems then more pain.
  • There are county agencies in every state that assist those with disabiities and those who need assistance . Check your local county governments website for adult services, services for the disabled, the Independent living groups in your area, all may be able to assist you in the meantime in speeding along the process. Unfortunately some things do take time and we all have to wait while tests are done, evaluations and treatment plans are developed, treatments set up and arranged and for any necessary medical devices.
    It is not a right away process for any of us, not just those who are on subsidized health care.
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