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neck and skull fusion

DomingoDDomingo Posts: 4
edited 11/23/2013 - 3:54 PM in Neck Pain: Cervical
hi everyone, i had a schwannoma tumor on my neck and ate c1 bone. the doctors rebuild the bone, they cut the blood basel to shrink the tumor they sent me home. but after 3 days i went back to the hospital cause i was in a lot of pain. they did a surgery in the back of my neck to remove the tumor.. they fuse my skull to c1 c2 . i was on a neck brace day and night for two month,, after the two month the doctors told me that i can take the brace to go to sleep.. i dont feel any pain when i walk or bend down or if i lift anything,, but when i lay in bed i feel a lot pain.. or when i get up on bed,, they did a xray but seems to be okay.. does anyone know about this.. please help me,, i cant take pain anymore.


  • LizLiz Posts: 7,832
    edited 11/23/2013 - 7:33 PM
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    Spinal stenosis since 1995
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  • X3rdeyevisionXX3rdeyevision Posts: 1
    edited 01/12/2014 - 5:20 PM
    I have c1/c2/c3 fused to my skull. I am almost 6 weeks out of surgery. Follow up on the 17th with NS to see if I'm starting to fuse. I have lost 50% of my neck motion. Really is a bummer.. I am only 22
  • patrain17ppatrain17 Ottawa area, CanadaPosts: 103
    Like x3rdeyevision, I'm also fused from occiput (skull) to c3. Likewise, I've also lost at least 50% of my neck motion which is really hard to get used to. After my surgery which was done in two stages, I wore a neck collar for 14 weeks. After taking it off I had to wear a soft neck collar for 2 more weeks. After removing my soft collar I tried sleeping in my bed but I wasn't able too because it was too painful so, I slept in my recliner for another month while doing physiotherapy. The physiotherapy gave my neck enough motion to be able to move back to my bed but even then at first, things weren't that comfortable but at least it wasn't painful. It took a few more weeks before I got used to sleeping in my bed and being comfortable. If you have any questions Domingo, feel free to ask, I'll be glad to help if possible. Take care guys!
  • I have 7 month since the surgery. And I still wake up with a lot of paint. Would this never will go away.. Have anyone experience it.
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