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IN AGONY!!!!!

I broke a disc L4-S1 5 1/2 years ago. It was misdiagnosed and I was put on steriods and cyclobenzaprine (had allergic reaction to) This went on all summer until I could barely crawl- finally got correct diagnoses and had extremely successful Diskectomy and at 8 week post op visit got GLOWING report from Dr.- that instead of recovering to only 80% of former functionality that he felt I would make full recovery in time!!!!! I was in NO PAIN WHATSOEVER!!!! Not even taking Advil!!!!! I am stubborn, determined and a pretty tough cookie for a girl- and a normal day for me was anywhere from 12-16 hours renovating a 200 year old farmhouse, completely on my own- no contractors!!!!!

ONE week after this great news I was at a complete stand still leaving a parking lot and a woman accelerated and rear ended me.It disrupted all the healed scar tissue and herniated 2 disks in my neck (which I had never in my life had a problem with)- I have had chronic pain, migraines, muscle spasms and unrelenting pain and permanent nerve damage in my right leg ever since.

I have essentially been on the same Pain Meds for the last 5 years 10 Mg. Diazepam and 3-4 Oxycodone per day. It's not working anymore and has reduced me to spending more days on a heating pad, portable Tens unit and inversion table if I am able to walk at all. I do mild stretching and moderate yoga and try to stay as active as possible so my muscles do not atrophy and I can maintain some stamina. It's had such a devastating effect on my literally every aspect of my life.

I don't want to be on all this crap anymore, yet I have no other way to manage the agony I live with even ON the meds.... Anyone have any alternative suggestions- I would love to have a good med or combo that will get me of narcotics... I can not live the rest of my life like this- and the fact that it is not working is telling me I have been on the wrong thing for too long.... PLEASE.... any thoughts out there?????

From BackDown67
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  • sandisandi Posts: 6,302
    edited 12/11/2013 - 8:29 AM
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  • thoracic spine painthoracic spine pain Posts: 566
    edited 12/11/2013 - 10:17 AM
    I have had intractable pain for 8 years and am on painkilling meds, muscle relaxants and a sleeper. No SSRI's, can't and won't take them. I will not take steriods either as I have seen the way people change on steroids.

    I came to a time where I realised I have to have meds to function. Sir Arthur Conan Doyle was supposed to be on opium all his life. Legal opioid medications are the purest for pain, they shouldn't wreck your other organs but your body does get used to them and the same dose does not work forever. Maybe you need a med review to see what other pain meds you can use, that will control your pain. As opioids kill the pain they also act on the pleasure centres as well - no pain, no pleasure. I have resigned myself. I would rather not have as much pain.

    Your body gets used to opioids so you need more to kill the pain. And it will never leave you pain free but at least enables you to function.

    Kratom is supposed to work well for pain and it is legal in the US. Medical Marijuana is a special strain so if it's legal it helps some people.

    If you can a physio helped me a lot ,as she put the one above my damaged vertabrae into the correct mechanical position. The ones above and below seem to try and compensate for the damaged ones. She taped it and my shoulder into the correct place so my muscles don't spasm it out again.I have also used Kalma (different brand name in the US) and that worked for a while, but they have now scheduled this drug in Australia and my GP won't put me back on it as he doesn't want me taking 2 scheduled drugs.

    I use a motivation hypnosis from You Tube every morning. The pain ones don't work for me as my problem is mechanical but they might work for other pain. I also use guided meditation from You Tube sometimes and that relaxes my body.

    I spent over $30,000 on finding a cure - the pain was so unbearable - central nervous system has to hurt lots - they were a total waste of money, most made it worse as I didn't have a proper diagnosis, it was something the Drs hadn't seen before but they didn't tell me that. The acupuncture helped a bit. I learnt hypnosis as I thought I might be able to control the pain that way. but as my injury is mechanical didn't help for pain.

    I am glad your are still fighting but renovating will be making it much worse. I had to modify my lifestyle, easier said than done - but when I feel ok I do too much stuff and really pay for it later.There is no magic cure - keep a pain diary just has to be activity then pain level every 30 minutes for a week and you will find which activities really spike your pain level. Things that I thought were doing me good, like taking the dog for a long walk, were making it worse cause he pulled on the lead and always put my spine outa alignment.

    It's a journey and I wish there was a magic cure but there isn't. Hang in there. Research yourself, it's what I ended up doing, any renovation killed me so you are probably aggravating it every day. If you broke your arm and kept twisting it it would never get better.
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