Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

In this Discussion

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test


jengerjjenger Posts: 6
edited 12/11/2013 - 7:45 AM in New Member Introductions
I am glad to have found such a wealth of information here! I hope to gain some support and insight, as well as make some new friends who understand the frustration of chronic conditions.

My story sort of begins in 2005, when I began having pins and needles pain in my feet & some burning pain on my left shin. An EMG done at that time showed some slowed conduction of my sural nerve on the left (I was 35 at the time.) They only officially tested my left leg, but I did have lesser but present symptoms on the right foot. I have autoimmune conditions in my family, and my neurologist at the time suggested I may have a related neuropathy starting. She felt this may be the case since I had a very low positive ANA titer, and a positive anti-phospholipid antibody titer. I have been tested and retested through bloodwork for many autoimmune diseases, and everything has since been negative, even those once low-positive tests.

Fast forward to November of 2012...age 43. I began to have squeezing pain around my left foot, like it was being pressed in a vice. I also had hypersensitivity along the top of my left shin, and pain that ran laterally on my left foot. I really never felt like this was coming from my back, as I had experienced 2 bouts of sciatica before, both times on my left, and definitely felt it in my rear end and down the back of the thigh. By March of 2013, I noticed I could no longer move my last 2 toes on my left foot, and the lateral side of my foot looked strange, sort of puffy. I also had muscle twitching on the instep and top of my foot.

After 2 steriod injections in my back that did nothing, I had another EMG/NCS. It re-confirmed the sural nerve issue, but this time also showed chronic denervation along the muscles in the L4-S1 dermatomes.

Also in March, I had a lumbar MRI which showed: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

My neurologist did not think this was coming from my back, but he also did not study the films and barely glanced at the report. I took this to a neurosurgeon, who did study the films and said this could be the cause of my issues, especially since the affected foot/leg was also where more of my lumber issues were. Bad news...the only way to stabilize the area was through a L5-S1 fusion. I did PT and lots of thinking over the summer, and finally decided to go through with the surgery in Sept 2013.

Which brings us to now. Post surgery, I had a lot of frank numbness on the left foot/lower leg. Better than pain at least. Now that has worn off, and I am back to most of the symptoms I had pre-surgery. Still can't move my last 3 toes on left foot. I have trouble going up on my heels on that side. I am walking, doing PT, and being told I need to be patient, and that if indeed this was all from a radiculopathy, it will take time for those nerves to heal. I have an xray coming up to make sure the fusion is setting up properly, but beyond that, I need to follow-up with my neurologist.

So, I guess, I am feeling sort of sad and scared right now. Thanks for reading such a long first post!
PLIF Sept. 2013



  • LizLiz Posts: 7,832
    edited 12/11/2013 - 7:28 AM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

    Spine-Health Main Menu Tabs

    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Spine-Health Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Doctor Advice Health Center The Resource tab, has many important features. You can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    Health Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - All new members must read our FAQ in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on Spine-Health Forum FAQ

    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

    Here are some links that all new members need to review to create effective threads and more

    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    You can also find Spine-Health on these Social Networks

    Facebook www.facebook.com/spinehealth
    Pinterest http://pinterest.com/spinehealth/boards/
    Twitter https://twitter.com/SpineHealth

    If you have any questions or need assistance, you can use the private message facility to[u] contact any one of the Spine-Health Moderators







    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
Sign In or Register to comment.