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Desperate for hopeful stories ...

Hey there, first time on this board--looking for glimmers of hope in my wife's situation. She's been diagnosed with SI-joint disfunction and periformis syndrome, and scans have turned up a number of bulging lumbar discs, plus a small partial disc tear at T-12. She's been extremely athletic all her adult life (43 now), probably did all this damage by training too hard after two pregnancies, not listening to warning signs. Running was the first to go two years ago; then cycling; then rowing; then vigorous swimming. About a month ago she had to abandon even slow/gentle swimming. For the past few weeks it's gotten so bad she can't walk around the block without triggering SI and hip pain. Doctors aren't recommending surgery. She's trying PT protocols but they seem to aggravate everything. Anybody been here and come back from it, back to being active? Or know of anybody who has? Her GP told her that people don't recover from SI disfunction once it becomes chronic.


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 9,859
    edited 12/18/2013 - 1:57 PM
    involved it is so much easy to regain the status you had before the problems began.

    Even after surgery, there are many things a person can do to attempt to regain much of what they had before.

    We have so many success stories here. We had a problem with several herniated discs and surgery. He overcame them, he was a professional hockey official before surgery and he continued to referee after surgery

    But you will read more about folks that continue to have problems. Those that made it, often leave the site to continue with the normal life....
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • stenosisRosesstenosisRose Posts: 489
    edited 12/18/2013 - 3:16 PM
    I am now 18 weeks post op from major lumbar surgery, still having problems but also improvements!!!!

    Improvents as big or small as they are are rays of hope and success mini stories along the road to recovery!

    I had severe foot drop and tripped over my own toes almost everyday, but since the surgery, the numbness is decreasing and I have only tripped a few times in 4 months. These are successes for me.
    I dont have to worry any longer about becoming paralyzed in my leg and foot as my feeling is returning gradually.

    Do I feel great or normal? NO!
    But my surgery was a success in that my numbness and weakness has been stopped from progressing.
    My cauda equina syndrome has been cured or at least treated with a good outcome.

    Do I have a long way to go if I ever get there? Yes
    But my spine was a mess before surgery and is still a messy severe case, but I see improvements and they are successes.

    So have hope, healing will come at whatever level your body can achieve.
    A positive attitude really helps and patience.

    Postitive attitude I have, but patience is something I need to work on LOL

    Praying for your healing and recovery
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