I’m finding myself in immense pain with nowhere to turn. I try everything and nothing helps. I’m a shell of who I used to be. The pain is relentless and I feel sometimes like I have no where to turn. I’m alone with this pain who wants to tell people everyday that your in pain 24 -7. You feel like a burden.Its not like I haven't tried to find help. I reach out to multiple dr's but I feel like they just don't listen to me. It's like they are in a hurry or they have they're own agenda's. I had a ACDF C4-5 5-6 with corpectomy back in May 2009. The first 4 mo were intense but I improved up to 18 mo then things went downhill from there. The pain is back worse than before the surgery and now I have severe pain in my left shoulder to the point I can't lift my arm and it radiates under my arm pit it burns intensely. My right shoulder hurts too but not as bad as my left. I had a shoulder MRI and there is nothing major wrong with my shoulder other than some arthritis. I'm so sick of pain meds and I'm not interested in getting stronger pain meds. My problems start because my surgeon closed his practice 18 mo after my surgery due to a medical condition. This has been a nightmare for me. I have gone to 4 surgeons and they all have something different to say. Honestly I feel like giving up at times I'm only 49 and I have been going through this since I was in my mid 20's.
I have had numerous injections because i will do anything to find relief. My frustration lies with the fact that I had a myelogram done back in Jan 2011 Then the next surgeon that was not the problem and that a screw could possibly be touching the spine. Well that surgeon ended up closing his practice for medical reasons. I saw someone else in that hospital and my records were never sent to him and he had the audacity to tell me all I had was " neck pain" . I wanted to punch the guy in the face. he wasted my time and it cost me $40 copay. I had no idea they didn't have my medical records or I never would have gone. I went to the next Surgeon he couldn't read the myleogram on his computer and promised to get back to me as soon as he could load it on his computer. I never heard from him. The next visit he doesn't remember telling me that and informs me that I will probably have to live with the pain and try spinal stimulator. What a waste of time. The first surgeon is 3 hours away from me so I haven't gone back to him but I later injured my lower back and was unable to travel in a car that long distance. I have had numerous MRI's they all say something different because there is a problem seeing around the hardware. I asked the pain mgmt dr to order a myelogram 3 mo he said I didn't need one since we are doing the injections. I asked him to review the previous myleogram. He said he would. Still nothing. Last week my pain was so bad I call the pain management dr to go in for trigger point injections I was just in the week before for followup appt. So when I was there I asked him to please ask my insurance again to authorize the discogram. He said I didnt need a discogram. They only do that if I would be doing surgery. I started to cry and told him I don't understand nobody knows what is wrong with me and I originally started coming to you for the discogram but my insurance denied it why can't we find out for sure what disc is the problem. He said no. Does anyone know what i can do. i'm so tired of living like this wondering what's wrong. How do I get my dr to order the discogram or a myleogram. Does anyone have a suggestion. I don't want anymore pain meds I want answers. This sucks when you just feel helpless!!!
Its not like I haven’t tried to find help. I reached out to multiple dr’s they don’t listen