I'm trying to find others who have issues with tailbone pain. I am coming up on 5 years since the onset of pain. After going through many procedures (including a failed spinal cord stimulator implant) I was finally seen by a coccyx specialist. It turns out that although I reported pain starting at the tailbone, each of the previous 5 specialists ignored that. None of them did an X-ray or MRI that focused on the coccyx.
In August the tailbone specialist did a series of dynamic x-rays which revealed hypermobility of the coccyx as well as arthritis in the same area. Since then, I have only been able to have an epidural injection; all other procedures have been denied by insurance.
I am not looking for pity. I have many thing to be thankful for. But everything I do causes pain. Each doctor has treated me like a pill-seeking junkie. Social Security says I am not disabled; but I cannot sit without a heavyweight coccyx wedge, stand without terrible pain, or carry things over 20 lbs. I used to be highly athletic. Now I am weak all the time. Walking to take my foster son to school takes all my energy. Its only 5 blocks from our apartment. I have no energy anymore and the depression is setting in worse than ever.
So my question is: Has anyone with coccyx pain had any kind of relief? Is there any hope?
I appreciate any responses. Best wishes to all of you for recovery!