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Coccyx / tailbone pain

Hi everyone,
I'm trying to find others who have issues with tailbone pain. I am coming up on 5 years since the onset of pain. After going through many procedures (including a failed spinal cord stimulator implant) I was finally seen by a coccyx specialist. It turns out that although I reported pain starting at the tailbone, each of the previous 5 specialists ignored that. None of them did an X-ray or MRI that focused on the coccyx.
In August the tailbone specialist did a series of dynamic x-rays which revealed hypermobility of the coccyx as well as arthritis in the same area. Since then, I have only been able to have an epidural injection; all other procedures have been denied by insurance.
I am not looking for pity. I have many thing to be thankful for. But everything I do causes pain. Each doctor has treated me like a pill-seeking junkie. Social Security says I am not disabled; but I cannot sit without a heavyweight coccyx wedge, stand without terrible pain, or carry things over 20 lbs. I used to be highly athletic. Now I am weak all the time. Walking to take my foster son to school takes all my energy. Its only 5 blocks from our apartment. I have no energy anymore and the depression is setting in worse than ever.
So my question is: Has anyone with coccyx pain had any kind of relief? Is there any hope?
I appreciate any responses. Best wishes to all of you for recovery!


  • First: i gave you my summary... at end i commented on coccyx!!
    I had treatment/ adjustments from a chiropractor 11 months ago. About the third visit i developed sacrum, low back, coccyx area discomfort/pain, that I was advised would soon leave as my body adjust to this treatment. The pain radiates and changes and cannot be pin pointed to a direct area. More pain to left and sitting may agitate. Clear mri and xrays. Had PT, massage therapy and participate with yoga and mild strengthing. My quality of life has took a huge affect. I now suffer with depression have
    to take prescribed pain meds in evening to be functional for my family duties! I have researched my condition and discussed with MD's and have found no answers. Any feedback would be tremendously appreciated!...
    .- Well i can say mostly my pain seems to stem from tailbone region. But if you push on my tailbone i dont feel direct pain. Seems possibly attachments in area.
    -I write to say i can relate to the way tailbone pain makes you feel like you have lost quality of life. And also am not med seeking but is the only way to cope with such a depressing pain! I am sorry and i can relate. Hope you get good answers soon!!
  • shzannsshzann Posts: 25
    edited 01/02/2014 - 3:01 PM
    Hi Wylliam,

    Like you, I had increasingly horrible tailbone pain for years. I had x-rays focusing on the tailbone, only ordered upon my request, showing it was broken in two places. I had three successful tailbone epidural injections, successful in that the pain was relieved for a short time, My MRI showed bulging and herniated discs low lumbar but because of my pain while sitting my doctor felt that the coccygectomy would be my best bet. I had the surgery July of 2012 and had only minimal relief afterwards. The surgeon claimed the bone was soft and non-healing.

    For 17 months I tried non-surgical options for continued pain relief and finally had a L5-S1 ALIF surgery one month ago. Because the herniated disc was impinging my sciatic nerve I had horrible "left butt cheek" pain that would travel down my leg and foot. I couldn't lay flat at night in bed at night due to the numbing pain in my butt. Woo-hoo I am finally able to say I am pain free while sitting. I still use a special pillow when sitting in a hard seat, driving, etc but it is mostly my pacifier. A little part of me is scared to sit without it. I would encourage you to find a doctor or surgeon that will help you look at any sciatic nerve impingement. I truly hope you get answers soon. You are not alone.
    Coccygectomy 07-12-12
    L5-S1 ALIF 12-03-13
    Bilateral Rhizotomy L4-S1 02-24-15
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