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New member-Old spine

ConiRCConiR Posts: 2
edited 01/03/2014 - 5:44 PM in New Member Introductions
Hello! A little history: while sitting at my desk doing computer work, my legs began to go numb. I have no prior history of back injury or problems. Through a CT scan at ER I was told C5-C6 had a bone spur (at this pint I was walking like I was intoxicated). Within 4 hours of initial onset I was completely paralyzed from the chest down. After being transported to a specialty hospital 3hrs away, testing began. Mylagram should no spinal fluid activity at C7-T1 level, that something was blocking spinal fluid flow. I underwent a 13 hr surgery to remove disc fragments from my spinal cord and an ACDF with plate and screws was inserted. Through therapy I was up and walking normal within 3 months unassisted. I never had neck, arm, or any other pain associated with the cervical spine. Even after surgery, no pain & no complications. 1year later, through a routine MRI check of the plate, it was noted that C5-C6 was compressing on my spinal cord and surgery was ordered. Another ACDF with plate & screws was performed, again no prior or post op pain associated with cervical spine. When I was paralyzed, neurosurgeon has no diagnosis or reasoning why I lost motor in my left side and sensory & motor in my right side. EMG shows sensory neuropathy from right hip to toes, but I am not diabetic nor does anyone in my family have this condition. 3 years later I now have L5-S1 fusing together, T8 nerve root compression, and C3-C5 spinal cord compression. I have also developed this "popping" (one vertebrae at at time) when I go from sitting to standing or visa versa. If I go really slow the popping can be heard and increases in sound as I move. I feel like a box of Rice Krispies! I also can't sit or stand for long periods of time, nor can I get out of bed without intense pain and "locking" sensations from my lower back. Some dr's label what I have DDD, while others simply don't know what to do! I've had two neurologists discharge me as their patient because they have no idea how to treat me! I look perfectly fine on the outside, but I'm falling apart on the inside. Any insights would be greatly appreciated! At the initial point I was 43f, smoker, non drinker, BMI 28, no pain meds, ADHD & BP MEDS, anxiety meds not working. 2CT scans, 2MRI's, X-ray's cervical spine &lumbar spine. Vitamin D levels normal. Bradycardia w/ Arythmia.


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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