Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement
advertisement
Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Approval for SCS: Worried about recovery - any advice?

CascaCCasca Posts: 8
edited 01/07/2014 - 12:47 AM in Spinal Cord Stimulation
I have just been given the approval for a trial in the coming weeks (this is the SCS that has been approved for me: St Jude Eon mini rechargeable IPG equipment
My husband has a demanding job which keeps him out of the house for 12 or so hours each day, and we live in a different country to our families. We are worried about the extent of practical support I will require during the trial and following the permanent implant surgery, if the trial is successful. We live in London (no car, public transport my most viable travel option), in a four-storey walk-up. I usually do most of the walking to the store, grocery shopping, carrying bags, cooking, household chores etc. I am mindful of not compromising the trial, so anticipate having to cut back on my usual activities... Please can someone give me an idea of what recovery was like for them - what you could do in what kind of time frame? We are very nervous and face some challenges in trying to plan some time off work for my husband. I would be very grateful to hear about your experiences.

Link removed, not permitted.Please read the Forum rules
Post Edited by Liz The Spine-Health Moderator Team
advertisement

Comments

  • LizLiz Posts: 7,883
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

    Spine-Health Main Menu Tabs

    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Spine-Health Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Doctor Advice Health Center The Resource tab, has many important features. You can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    Health Videos Index to all Spine-Health Videos



    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.

    IMPORTANT

    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - All new members must read our FAQ in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on Spine-Health Forum FAQ

    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

    Here are some links that all new members need to review to create effective threads and more

    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    You can also find Spine-Health on these Social Networks

    Facebook www.facebook.com/spinehealth
    Pinterest http://pinterest.com/spinehealth/boards/
    Twitter https://twitter.com/SpineHealth

    If you have any questions or need assistance, you can use the private message facility to[u] contact any one of the Spine-Health Moderators

    dilauro

    tamtam

    Liz

    Sandi

    JellyHall




    ********************************************************************************************

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • chrelseycchrelsey Posts: 90
    edited 01/07/2014 - 2:50 AM
    I had my trial in mid-December, and received my permanent implant on December 24. I have a Medtronic's unit. During my trial, I had to be very careful in terms of movement - no bending, lifting, twisting - as the leads were just floating, and were very susceptible to movements, and I didn't want them to move out of place. When I had the permanent leads placed, my Medtronic's rep was explaining to me yesterday how my neurosurgeon used an "anchor" and sutured them down. Some people have the paddles, which require laminectomies to better secure them, but my NS wanted to try this way first. After my perm implant surgery, I was told no bending, twisting, stretching, or lifting anything more than 5 lbs. until my two-week post op appointment.

    I just had my staples removed yesterday, and when I asked if I could begin bending, lifting, twisting, etc., and I was told no - I need to continue those restriction for another 4 weeks. Ugh! While that is frustrating on one level, I also know that there needs to be time for scar tissue to form around the leads to prevent lead migration. My husband has been very helpful in pitching in - I can't make the bed, unload the dishwasher, put things in the oven - any activity that causes me to bend, lift, or twist. I have come up with some work-arounds to help him out - for example, if I roll my office chair into the kitchen, I can unload the dishwasher sitting down, which prevents bending. I can also load and run the washing machine, but I still have to have him help with putting the clothes in the dryer, as that involves bending.

    Being unable to do as much as I used to do - in terms of the housework, cooking, etc. - that is frustrating. But I remind myself that the restrictions are not forever, just until my leads scar in. And although I know it has put a greater burden on my husband, that, too, is temporary. What is not temporary, though, will be the pain relief, the increased quality of life, the ability to re-join life and do more with my husband - that is what makes all of this inconvenience right now worth it!

    If you move forward with the trial, I wish you the best of luck! I have noticed about a 75% decrease in pain with my stim. I have also been able to step down from taking Oxycodone, and now only take Hydrocodone. That is HUGE for me, and now when I look at the future, I see hope, whereas before my stim I saw only day after day of pain.

    Good luck!

    =Becky
  • there is a wealth of detailed information on previous pages. You will need help on perm implant for about 4 days. You should be fine during trail just take it very easy first 24-48 hours
Sign In or Register to comment.