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Pain FROM spinal cord stim, and other issues.

edited 01/07/2014 - 8:00 PM in Spinal Cord Stimulation
Hi, my first time posting. I have had 3 back surgeries over ten years ago, last five years pain back and been on pain meds. Drs talked me into spinal cord stimulator, not thrilled, helped with pain in my legs and knees but not lower back. Now, 6 months post op from placement, my battery pack in my left lower hip/buttock area, is so tender and sore. It hurts to sit or lay, no swelling or bruising showing, but very painful. Anyone else have this issue?
Also, I feel so out of options, now that I have this thing my drs want to take away meds, they don't want to hear it wasn't a success. They just keep saying give it time, or let's adjust the settings. I'm so over this, it's caused me to now be depressed, in constant pain, see no hope!! Can anyone understand, and offer any advice. Thanks sooooooo much! I just don't know where to turn for help.
Painful life in sw Florida.
Lydia wiliams


  • LizLiz Posts: 7,832
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    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dryflydryfly Posts: 23
    edited 01/20/2014 - 7:49 AM
    My SCS is causing me ALLOT of pain as well. My buttock aches and feels like someone is stabbing me. For me, the whole thing has been a waste. I crank it up to deal with my pain and I feel buzzing AND pain. I wish I had not had it implanted. I've had it adjusted more times than I can remember since it was put in last June. Going to talk with the MD tomorrow about removing it....
  • BotzBotz Central FloridaPosts: 223
    I went thru the same stuff. Battery pack tender and PM wanting to cut meds. I was able to cut them down in the beginning. After many adjustments and it not covering my intense pain I shut it off. PM finally gave me enough meds to get by. I started the injection route again.Some worked others did nothing. I was able to get 3-5 months out of a couple back to back injections. After about 20 I was done. Called my surgeon and had surgery # 3. L4 and L5 decompression. I also has the SCS removed. So glad it's gone. My surgeon wasn't happy to remove it but I pleaded with him.Well that was in March 2013.
    I would have to say my pain is better. I have been to pt for the last. 4 months. I still have to take meds but at least the intense stabbing pain is less.Sitting 9 hrs at a desk is hell but I have no other choice. I have to work. One thing I find helpful is an adjustable desk so I can stand or sit. Take care
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