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Chronic Pain Support Groups

Hi Everyone,

I am wondering if any of you have Chronic Pain Support groups in your area and if so if you attend? I have been looking around in Moncton (small Canadian city) where I live and it appears we don't have one. I have considered trying to form one but have absolutely no idea what kind of interest there is out there in groups like this.

I know for myself there are so many things I could have gained over the past few years from a group like this and could still gain.

First and foremost we all know (and likely belong to this site because) chronic pain is a lonely place to be. My family and especially my husband have been a huge support through all of this however, I sure would love to have someone in my life that truly understood. Sometimes it can be hard to force a smile on and say I am okay since saying anything else would only prove to hurt the ones around me that are trying their best to help.

Secondly since the minute I injured my back I have felt like a blindfolded rat going backwards through a mazy trying to navigate our medical system and find the right specialists. I know for the ones of you in the USA this isn't as much of an issue but I am certain my fellow Canadians will agree that in our medical system it is a constant struggle. It sure would have been nice to have someone in the same city who has been through something similar that could have helped me figure which Dr to try and see etc etc.

Anyhow, to the point of my post. Do any of you belong to one of these groups? How often do you meet and what does your meeting consist of? Do you find it beneficial?

Thank you in advance to anyone who takes the time to share the experience on this topic with me.



  • I know of one that meets weekly at a local hospital, but I'm working so its hard for me to escape early in the day. I'll have to see if there are others around with better meeting times.

    Diagnosis: Thoracic facet syndrome & cervical and thoracic radiculopathy from car accident trauma.
  • dilaurodilauro ConnecticutPosts: 9,863
    edited 01/24/2014 - 9:08 AM

    I know in the Danbury CT area, almost all doctor's offices have posted information as to the various types of support groups in the area. Same goes for the churches around here. You could aways try contacting the Visiting Nurse Association in your area, Knights of Columbus.

    Even just doing simple web searches can lead you to many resources. This site allows the user to select the state they need and find information that way..


    Here is a site that may get it closer for you:

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • JanelleJJanelle Posts: 30
    edited 01/25/2014 - 11:10 AM
    Thanks, I had actually found and tried that website. The same day that I posted on here I also posted an ad on EDIT (Craigslist type site) and someone answered. There is a group here in Moncton that meets once a month and has four members. Not exactly what I was looking for but I am going to go check it out in February if I can sneak out of the office for a few hours since they meet during office hours.

    Thanks again for your help.

    LTee please let me know if you make it to a meeting what you think of it.

    Post edited by the Spine Health Moderation Team member Sandi
    Please review the forum rules prior to posting at these links for more information.


  • before my numerous fusions, the hospital that i went to gave mandatory meetings to get with other surgery patients to do over what will happen and what to do after the surgery. they also gave out a notebook for our references and i also met people to talk to about back surgeries. they one guy who wanted to be my friend started out with good intentions, but we had a room together after our respective fusions. he was all right for about the first three days then all of a sudden he flipped. he told the nurse that i was talking to donald duck and i needed help then he said he wanted to leave and he got up, took off his gown, got his suitcase then walked out the door naked as a blue jay, except for his slippers. they called the doc and needless to say his poor wife was embarassed. needless to say they had to adjust his meds. he was up all night crying. i left the next day so i don't know what happened to him. so watch out what you wish for it might come true. this is a true story by the way.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
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