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Stem cells and chronic pain

Not sure if I'm posting this question in the right area?

Has anyone looked into stem cell therapy as a means of dealing with chronic back pain?

God knows I'm sick of opiates, the buckets full of various pills & specialists who think that you can shoo the pain away.....

I hope that your all doing ok today.

Kind regards

Rob

More titanium steel in me than a modern car.....
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Comments

  • dilaurodilauro ConnecticutPosts: 10,045
    is that it is a possible way to slow down Osteoarthritis. Right now, there is no cure for Osteoarthritis., for Rheumatoid Arthritis, there is medicine t manage and control it.

    My therapist gave me an article about how platelets are withdrawn from you body, put into a centrifugal device and injected back into the affected areas. I am sure interested, since Osteoarthritis has already taken both my shoulders and hips.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • thing has been thrown around the spinal cord injury forums for some years now, and the last that I read, while there were lots of promises made, little progress was shown from those who actually went overseas to undergo the procedures and it cost them thousands of dollars in wasted time and efforts.
    I looked into it myself when my first onset of CES was diagnosed to see if there was some way to restore some of what I lost, but the more I looked into it, the less enthused I became because of all of those who did undergo various forms of treatments only to wind up much less financially stable, and left with a bunch of empty promises.
    There may come a day when our technology has advanced enough to be able to program those stem cells to do what they are supposed to do, but I don't believe that that advancement has come as of now.
  • Many thanks for your comments.

    I'm seeing the person who is heavily involved in the research and treatments in Australia. I read on his website that a police officer had major pain, got medically discharged, had the stem cell treatment and got back in doing light duties. Better than sitting at home and popping pills like I do.

    I'd roll around in chimpanzee poo if I thought it might help with constant and debilitating pain.

    Thanks again.
    More titanium steel in me than a modern car.....
  • Just please, before you invest a ton of money, and pin your hopes in this as a treatment option, do tons of research , there are far too many of these websites and promises of a "cure" for spine problems, and other conditions out there, that do nothing more than take your money and then leave you out to dry once the money is gone.
    Don't believe everything you read on a website or those so called testimonials posted on them...if they can't back it up with bona-fied medical studies showing their miraculous results, that are published in medical journals- think twice.
  • Hi Sandi

    Many thanks for your message. I greatly appreciate your advice. Yep, snake oil still exists.

    I understand that there is a lot on the Internet that is simply nonsense.

    I can't help but wonder why the pharmaceutical industry isn't a fan of this therapy - maybe it's a direct threat to the zillions they make off sick people?

    The facility that I'm looking at has actually treated people free of charge. I know the principal personally and he's not a man chasing fame and fortune (he already has the $) but is genuinely concerned with the well being of others.

    Anyone who is prepared to put their own money into researching medical improvements (and is a genuine medical doctor) for broken people like me, gets my attention.
    More titanium steel in me than a modern car.....
  • Bad back Rob, I have also been questioning this. I have been on narcotics and yesterday I heard some comment about my future being a morphine pump, so I am desperate to find an alternative.
  • Many thanks for the replies and thoughts.

    When you can't move and your spine is held together by steel, snake oil salesman unfortunately grab my attention.

    I know that I'm broken, but, I just want to be a little pain free. Ain't gonna happen, me thinks.
    More titanium steel in me than a modern car.....
  • You are not alone, I looked into every "option " out there, after my first surgery went south, like I said from stem cells, to some little gadget that I read about that they developed that was supposed to be so tiny that they could implant it in the spinal cord and each nerve would be placed between these paper like separations....and it was magically supposed to give you the ability to walk....
    I do understand, when our surgeries don't go the way we are told, or there are complications, expected or not, there is a part of us that fights and is willing to do just about anything to get back what we had.....all while we are kicking ourselves for where we are....
    Things do get better, over time.......and sometimes it is a lot of time, but even today, 8 years after my first surgery, I still see minor improvements in the pain.
  • A few years ago I looked into stem cell sites that promised just about every cure you would need, including back and spinal cord injuries. At the time my wife was seeing a world renowned neurologist for her cerebellar Ataxia. I had a lengthy discussion about stem cells. He said there was no known cure for any of the claims these places were making, mostly coming from China. It cost $30,000 plus American dollars. Patients left thinking there was big improvement, mostly because thats what they wanted to believe, and these patients went home and ended up as bad as they were before and a lot poorer in the process.

    Dick
    Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007.
  • What you posted about what was I was referring to in my earlier cautionary posts........there are lots of companies out there, who promise the moon when it comes to what stem cells can and can not do, and they take thousands of dollars, put the patient through intensive physical therapy while they are there, and call any sensation a "sign" of impending "cure".....
    It's sad that there are places willing to take someone's money and hope , and then scam them but they are all over the world from what I researched back then.
  • BadbackrobBBadbackrob Posts: 42
    edited 03/30/2014 - 1:21 PM
    Yes, when you are wracked with pain, go to stand up and nearly collapse because the morphine pills just aren't hitting the spot anymore, you become desperate. EDITED

    My medical team have gone berko about me getting involved in stem cell therapy, so, I've put it on hold. The dude that's heavily involved in stem cell research has treated people for free and isn't chasing dollars. I take my hat off to this bloke and maybe one day I'll give this a try.

    Thanks again for the replies and advice - greatly appreciate it.

    Post edited by Sandi- discussion of the use of illegal drugs is not permitted on Spine Health
    More titanium steel in me than a modern car.....
  • If you search 'Plasma Rich Therapy' on this site a doctor who's practice is very close to my home is one of the first results. I had an appointment with him this morning. He says that this science has progressed a lot in recent years. He was very honest about the 'graveyard' part of my spine which is way beyond repair but believed he could save the rest of my spine with this treatment. The disc which is just herniated & torn was his main focus. He insists that without intervention it will follow the path of my other discs below it which are black. This isn't new news to me. What I'm interested in is the glimmer of hope for my other discs.

    Regenerative Therapy - Regenerative Therapy is a new field of medicine devoted to the treatment of multiple conditions by utilizing cells (platelets and stem cells) to repair damaged or destroyed tissues. These cells are obtained from the patient’s own blood (platelets) or bone marrow (adult mesenchymal stem cells). Regenerative medicine techniques, such as platelet rich plasma therapy (PRP), can provide faster recovery and prevent the need for more invasive surgical treatment.

    I'm not one for 'snake oil' or 'magic bullet' solutions. This isn't some doctor in china though & he insists that more insurance companies are covering a large percentage of costs & said that the USA army regularly uses these treatments with great success. Is this true?
    As I said, I only spoke to him this morning. I haven't fully researched this subject. I'm just interested in what my Spine-Health friends have say. ;-)
    Osteoarthritis & DDD.
  • Tired of the painTTired of the pain Posts: 197
    edited 04/03/2014 - 10:26 AM
    My husband had it and it really helped him, but he had it in his elbow. What I was researching was stem cells that are being used to regenerate nerves in the lower back on paralyzed nonabulatory patients.
  • To be honest I didn't know he was on this site until I got home & searched. My doc referred me to him for a 'chat' & I was given the impression that there was something more 'conventional' he thought might help a little. If I'd followed my own advise & asked all the relevant questions on the telephone first I'm not sure I'd of gone. My doc (GP) is a lovely, compassionate man with my best interests at heart but he's unwilling to accept my specialists & surgeons views that there's really nothing to be done other than pain management.

    The Dallas Cowboys training field is very close to my home so all of my specialists treat them, this new guy doesn't! You're right, that speaks volumes to me. I was surprised that there was a doc on my doorstep who offers this kind of treatment. I thought this was one of those 'out there' snake oil things borrowing legitimacy from the advances made in stem cell research in other areas of medicine. It's more common than I thought. I know this doesn't mean it actually helps with disc degeneration. It just caught my attention for the first time this morning.

    I've spoken about how devastating 'Hope' can be for me. I'm not letting myself get carried away ;-)
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 04/03/2014 - 3:04 PM
    Does anyone know of any damage this kind of therapy can cause? Is 'it probably won't work' the only reason not to try in your experience? I'm just thinking out loud here....
    Osteoarthritis & DDD.
  • Given that it is in the experimental phase, it is possible there could be unforeseen consequences down the track. Also there are risks with injecting any kind of substance into a disc or other spot in the spine so this treatment would share some risks with steroid injections, discography etc.
  • This doc says he is the only one doing regenerative disc injections!!

    I don't want him to sound too bad. He didn't make wild promises about my 'black' discs & very arthritic areas (Modic changes etc). He said the same as other very reputable spine specialists in the area. It was only the area of my back with progressing degeneration that hasn't got there yet (just herniations & a rip) that he believed he could help.

    I'm 99% sure I'm not going to take this any further but I am going to discuss this with my insurance company. He said they're often paying for most of the procedure now because of success rates. That's interesting if true. This was only yesterday so I haven't had a chance to discuss it with my regular docs.

    Does anyone know anything about this being a common treatment in the army now?
    Osteoarthritis & DDD.
  • How do I find out if this is experimental? He said it wasn't?
    Osteoarthritis & DDD.
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