I was 14 years old when I had my spine fused from below my neck to below my waist. I had to have two metal rods put in plus screws plus chips off my hip bone because my back was it a 52° angle in an S curve. Fast forward to when I'm 26 begin having back problems. The pain was usually on my right side and finding a doctor is almost impossible. I did finally find a pain doctor that believed what I was telling him. After trying all conservative approaches I had a pain pump installed into my back. I then had was called a rare side effect of CSF fluid draining from around the catheter and after three blood patches it has not stopped. I think it has stopped now about four months after my original surgery but I'm not sure because I still spend most of the day laying down.
Anyway that was just the background so you would understand what I wanted to talk about. Sometimes I feel very angry with my parents and made me have the original surgery when I was 14. I look at all and I have lost because of the surgery and it's so hard. I love my mom and dad very much and I know that they would never have done anything to hurt me, but here I am 28 years old basically bedridden. The rational part of my brain just I'm just trying to find someone to blame because the situation is so bad. I was wondering if Other members have any thoughts like this in regards to issues they had scoliosis or otherwise.
2000- spinal fusion, complete spine due to scoliosis
2012- pain began, started treatment for chronic pain
2013- install of pain pump, procedures to address complications
2014-blood patch, spinal fluid leak