Not sure if this belongs here or not.
First of all I want to tell each of you how much I respect you for how you
make good of your lives and look for all the bright sides of things. It has
made me feel guilty for whining about my problems.
I am seriously desperate today and so depressed I just want some advice
as to what direction to go. Be honest let me have it if you think
I am looking at things from the wrong perspective. Will make this as short as
One thing is my stomach: asked and got great advice from some members.
I have battled my stomach problems for over 2 1/2 years constant bloating, nausea,
acid (actually burning my throat, side of mouth and blisters inside). My stomach
right now never goes down, the pain is unbelievable, food hurts to eat I live on toast,
crackers, water, Gatorade, mashed potatoes just boring food. I have seen 4 Doctor's
GP who tried different meds. finally Nexium which helped at first not now.
Gastroenterologist results: x-ray nothing showed up and said go on diet bland food.
GP retired new GP did not even look at my chart, rubbed stomach 10 minutes later
"you do have an issue try drinking more water, watch the spicy food".
I decided between that and some other issues he would no longer be my doctor.
New GP sent me for ultra-sound: Tech said "wow you are loaded with Gallstones and
no wonders you are in pain". Hey I was happy a plan!
GP refers me to a surgeon: He said "yes you do have issues but I do not feel like
with the hardness and size that is it, I want a CT and I noticed that you are taking
30 mg Oxytocin one every 8 hrs. He told me " I don't prescribe over 5mg Oxycodone
that is it so you are going to be in a lot of pain after surgery because of your tolerance".
I told him that is one of the goals my PC and I had set was to get my pain meds
down to where he could give me something that worked. He goes" You will have to
talk to him I do not do anymore and I won't" Ok I know where you are coming from.
Waiting for his office to call and I have called but after 2 weeks no results. Hummm
Pain Doc: I have been to two other Pain Clinics before this one no improvement,
therapy, $13,000. in new beds (no good cannot sleep flat) so many meds both opiate
and all the others no help, lots of allergy's to all kinds of meds, researched it all, tried so many things and yes some help.
New PC: First visit 15 minutes results: myofascial Pain syndrome caused by injury or damage to the fascia.
Cysts lower spine, arthritis, Fibro, Chronic Pain syndrome and tolerance to pain meds.
Plan: Cut the meds he said it would improve my pain. Yes I am educated about that.
Therapy and injections. He cut my meds in half first visit. From then on it was his
assistant every month for follow-up and saw PC at injections.
I was excited had a plan, Well injections no improvement and the last ones he hit
something now I have itching, water running down my legs (no water there), weak left
leg, balance issues, bubbles across my butt under the skin, waves in eyesight. What
the pain and yes I let that part slide it is expected. At the time of the last injections my heart rate
went up to 134 and headache. I called the office and they said "ice packs and Aleve".
But now 4 weeks later it has not changed and I am scared. Made an apt. with eye doctor.
Follow up assistant I told him about the injection: he says sometimes he hits muscle and
it will let up and go see your GP for your heart. I did my heart, kidneys and liver are great.
He said I won't lower your meds. you need to see the PC.
Last week PC took Hubby with so if the Doctor wanted to ask him anything he could.
I told him about my stomach and had the Doctor called? He said no and then he pulled
up the CT and told me you have gallstones for sure but not sure what else. I told him
about what the doctor said about pain meds. He told me well I don't give out acute pain
meds you need to find a new surgeon. I really tried to follow the guidelines and just tell
him about the pain related to my back. He dismissed me like a child and it infuriated my
husband. He has watched me cry, pace, not able to do a thing on and on. I am not one
to stop my life I do all the things we talk about to keep living my life. But I can't do it and I
am scared for the first time this is not me. What do I do get a new PC for pain management
and a new surgeon
for my tummy. Please help me will that be Doctor Shopping? I wanted to succeed at that
Pain Clinic if I have to continue there I will but my husband is giving me hell for it.
Please help me today I am even getting my life in order not because of the pain so much
just that I am so so sick, tired, no family involvement, too sick and in pain to attend things.
I want to go see my Mom who is in a rest home 3 hrs. away and ill but there is no way I
can, she calls crying that is hard to take. I have never been like this so forgive the long letter
I won't do it again I promise.
Thanks for all you do and being there for me and all the others. I know I get on my high
horse or whatever but I do feel like this web-site is critical.
Have a warm, soft, kind, not so much pain day.
Thanks always for your help