I'm 31 years old and have had reoccurring numbness and tingling in my right thigh for over 10 years and some mild discomfort in my lower back. I went to doctors, hospitals, emergency clinics for years and they would give me some pain pills or neurontin and send me on my way saying it's a pulled muscle pinching a nerve. I've spent the last year unable to lay down in a bed and sleep. I sleep sitting up in a chair.
I finally got insurance this past month and have been burning that card up like it's a no limit no bill credit card! I've seen my new primary doctor twice, my neurosurgeon twice, gotten an MRI done, several x-rays and a bunch of other tests and finally, I was diagnosed with RA, sciatica and lumbar spinal stenosis. My primary care doctor said he wasn't sure how I'm still mobile and truth be told, I'm not very mobile anymore! After my MRI the neurosurgeon immediately said surgery, rods and pins in your spine. My L5/S1 is dead, gone, totally compressed, my L3/L4 and L4/L5 are close behind. He sent me down the hall to be fitted for a back brace and then referred me off to a pain management specialist.
The pain in my right leg has become 10 fold worse than it ever was before since I've gotten the back brace. I only wear it when I'm up and mobile like they told me, and my husband keeps telling me it's normal for the pain to intensify before it gets better. I can't seem to stand up from a sitting position now without assistance because my leg pain flares hot and sharp and my leg tries to buckle. Walking in the upright position the brace puts me in has limited my ability to walk for more than a few minutes before i have to stop and lean forward over something.
I go in 2 weeks to see my pain management doctor and I'm very nervous. Having a name to put with my pain hasn't helped me like i thought it would. If i just knew WHY i hurt like this all the time, maybe it would give me some peace of mind that it wasn't all in my mind.
Today I get a letter in the mail from the disability office saying they spoke me with me recently (I haven't contacted them, maybe my doctor?) and asking me to fill out a couple forms to get my disability case started... This is the beginning of my journey and I'm already exhausted.