Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

new pain med

has anyone heard anything about a new pain meds call..ZOHYDRO


  • dilaurodilauro ConnecticutPosts: 9,865
    of controversial media on this Extended Release narcotic.

    From what I've read about it, I dont know how successful it is as a pain medication. Seems to get more negative press.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I have heard of it, its an extended release version of hydrocodone. I feel the negative press stems from the DEA, that said, I have read that it is a very good medication at controlling chronic pain but must be taken as prescribed. From what I understand one slip up could cause a person some major problems. I'm just not sure about it right now, its too new. Would I want it prescribed to me or my daughter or husband or anyone in my family (I am the only chronic pain patient in my family, btw) No, I would not...I just feel there's not enough positive's about it yet.
  • with all of the negative press due to other xr drugs like oxy or the other ones, i think the DEA and congress are reluctant to release another drug along those lines unless a protective coating is put on it lie oxy. this is what happens when drugs like oxy are abused and the press gets hold of this. when a new narcotic comes out, the press, congress, everyone goes crazy and all the hysteria involved will affect the production of this new drug no matter how good it is. this is why i have major issues with people abusing drugs, it affects all of us who in reality need them and use them.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • My body has always responded really well to Hydrocodone but the acetaminophen limits the amount I feel comfortable taking. This is just an extended version without the Tylenol. Some of the press has been rediculous on this subject. The main problem socially comes from the fact it doesn't have a tamper proof coating & the whole no crush formulation. I can't see anything bad about this drug if it's taken as prescribed. To be honest I would love to try it as my ER medication but all the negative press & speculation is making me hesitant.
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 04/10/2014 - 4:40 AM
    Talking of drug abuse.. Have you seen the film festival movie Oxyana yet? I watched it last night..

    Set in the middle of unbelievable natural beauty, a beauty that in the last number of years has been marred by the Appalachian scourge of Oxycontin. Life persists, but it’s a living that few Americans could explain or even believe - closer in kind to the world of a medieval plague. Men and women die epidemically. The addicts — who are the vast majority and all nice enough people — sell, scramble, and steal in an economy of nigh-endtimes desperation. Worn down and out by the pills, the mines or the indignity of both, everyone looks twice their own age and is unable to imagine an existence outside of coal, subsidies and prescription narcotics. Things could hardly get darker than in this place called Oceana.

    I hate that this is the 'public face' of Oxycodone. So depressing!
    Osteoarthritis & DDD.
  • that there will be very many dr's who would be willing to prescribe it. It's like pulling teeth to get less stronger drugs like oxy, with all the negative hype, & "Big Brother" aka, the DEA watching a dr's every move, I just don't think many dr's will be willing to give it to a Spiney. A cancer patient, maybe, but not a Spiney. It's too bad , it could really help a lot of us, but I wouldn't hold my breath that very many of us will ever have the opportunity to try it.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • According to the info I found searching it's not some super strong narcotic, that's the press being dramatic. It's just Hydrocodone in an ER version (with no liver damage from the acetaminophen). It's available from 10mg. The first link I clicked on said..

    That’s why I have difficulty understanding the uproar over Zohydro ER. As a pain specialist, I welcome another effective treatment to offer chronic pain sufferers. Sure, I’d be happier if it had a hard coating or some other “deterrent” to abuse. But in reality, Zohydro ER is, for all practical purposes, neither safer nor more dangerous than many of the drugs I already prescribe with success. So far, tamper-resistant innovations have not been proven to be effective in the big scheme of things. All opioids, regardless of the formulation, must be prescribed with caution and careful monitoring.

    I'm not good at the whole conversion thing but by mg isn't Hydrocodone weaker then OxyContin? It's an ER so no doctor is going to prescribe it for patients who don't already have a tolerance but that's true of all of the ER meds I've ever tried.

    Prescription drug abuse is big business for the media. I understand the controversy because other drug releases have been delayed until a tamper proof coating has been developed. I'm not that scientific, there must be a reason why they can't just use one of the coatings already developed because they're saying it's going to take years to develop that part. I read that Hydrocodone is known to cause less itching & other problems than other narcotics & that's why release was rushed. Some suffer chronic pain but have terrible reactions to the ER's already on the market.
    Osteoarthritis & DDD.
  • I'm sorry if I've got any of that wrong. It's just the info I've found ;-)
    Osteoarthritis & DDD.
  • terror8396tterror8396 Posts: 1,832
    edited 04/10/2014 - 11:13 AM
    it is just the same as vicodin and weaker than oxy but it is the idea of here we go again with another extended release med that can be abused is the problem. from what i gathered it is the fact that they would like a protective coating that prevents the abuse that happened with oxy is the problem. extended release gets people going whether we like it or not. it is the abuse of the people who want narcotics that do not need them that is the real issue. there have always been issues with narcotics always will and it will never change. this is something we have to be aware of.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • MSG said:
    that there will be very many dr's who would be willing to prescribe it. It's like pulling teeth to get less stronger drugs like oxy, with all the negative hype, & "Big Brother" aka, the DEA watching a dr's every move, I just don't think many dr's will be willing to give it to a Spiney. A cancer patient, maybe, but not a Spiney. It's too bad , it could really help a lot of us, but I wouldn't hold my breath that very many of us will ever have the opportunity to try it.

    Dr.s get kick backs from the drug reps to prescribe medications. If its new on the market there will be a push to prescribe it, therefore it will be prescribed. MSG, I honestly can say that when I have had issues with my spine or was having a pancreas attack, I never had a dr. refuse to prescribe me the meds to relieve my pain. Dr.s do not let people suffer if they know there is a legitimate issues, that is just plain in-humane to do this and I have never met one that has wanted to watch me suffer. I live in KY and everyone knows the stigma with pain meds in this area & the dr.s know it as well but yet, even living in KY, I'm treated for my pain issues, with respect, I might add. I have plenty of medical records, MRI'S, CT-scans, gallons and gallons of my blood has been drawn to prove that I have the pain that I say I do, I have I have 6 specialist that I see on a very regular basis (every 2-3 months) so, that means every month I have several appts to make. This month I had 4 appt.s all of them an hour drive from me, I rescheduled 2 of them for a couple weeks, as its hard for me to sit in my truck for that long, even when I have the heated seats on keeping my back warm, after every appt. it takes me at least 2 days to recover from it. Bottom line is this, if the tests and records show there's a problem then you, I or anyone else will be treated appropriately.
  • I'm in Texas & my experiences have always been similar to yours when it comes to meds Taren & I share your pain when it comes to recovering from appointments...ugh! My pain generators are easily revealed with regular diagnostic tests though. I do feel desperately sorry for those who have rare or hard to prove conditions. I honestly believe that there are people who share our pain levels but receive inadequate care.

    Before we moved to the USA I was completely unaware of prescription medication abuse. I watched that movie Oxyana last night & the thing that truly disgusted me was the criminal doctors taking bribes to prescribe quantities of narcotics that no human being could consume on their own, 15 x 80mg Oxycodone a DAY + huge amounts of methodone for one person!!!
    Osteoarthritis & DDD.
  • MSGMSG Posts: 296
    edited 04/10/2014 - 1:05 PM
    I'm glad for you that you feel your pain has been appropriately treated by your Dr's, & I 100% agree that's the way it should be. But there are tons of people on this site with all the proof in the world, who are not getting the meds they need to control their pain. I don't think it's because Dr's want to see their patients suffer, but with the DEA breathing down their neck, they are reluctant to prescribe narcs. Some pm clinics won't prescribe at all, all they will do is procedures. I found out the hard way my pm dr believes it's the Tylenol in narcs is really what helps people, therefore all anyone needs is Tylenol. Fortunately my Ortho prescribes Norco for me, & for now I'm doing so-so on about 4 a day. Compared to all the stuff others take (and I do not judge anyone for their meds, whatever works), I consider myself lucky. But I know this will not last forever, & at some point things could go south very fast, & I may need something stronger that I may not be able to get.

    I'm not sure I agree with you about Dr's getting kickbacks, especially when it comes to narcs. I would think that could cause them even more problems with the DEA. However, quite frankly, I hope you're right, because maybe than people who need Zohydro could get it.

    I also agree with Jon that abuse/addiction of narcs always has, & always will be a problem. You can coat it all you want, true addicts are always going to figure out a way around it. And who suffers, the legitimate people who need narcs to survive.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • I guess I should have started that with, "Based on my own personal experience" Didn't mean to offend anyone. Englishgirl, you are correct, there are some legitimate people who are under treated or not treated at all-there is one here that I know of and I have been keeping up with his story. From reading his posts, I agree, he is definitely under treated & I'm sure there are others out there like him. My bad, again.
  • I believe I have read on one or 2 of your posts that your dr's have recommended surgery for you....Do they feel this will improve your quality of life? And, please forgive me if I'm wrong, but you do not want the surgery, am I remember correctly?
  • If you are worried that you offended me, don't, because I'm not. I genuinely am glad for you that your dr's are treating your pain properly, & I was especially glad to hear that you feel you are being treated with respect. I was just pointing out that many others are not treated right, though they should be! I surely hope I didn't offend you, because I would never do that on purpose.

    As for surgery, my Ortho recommend it, but I don't want it. However, I did see the neuro he recommend, so I could get all the info before completely ruling it out. The neuro surgeon took one look at my medical history, & said he would never operate on me for 3 reasons:

    1. I developed 12 blood clots in my lungs after a previous surgery
    2. I've been on prednisone for 30 years, & that causes slow healing
    3. I'm not exactly a size 0

    Honestly, I wasn't disappointed. My gut tells me it's a bad idea for me. But you never know, something could get worse, & I may have no choice.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • JAM661JJAM661 Posts: 121
    edited 04/10/2014 - 1:46 PM
    No matter what the government does or doctors or drug companys there is going to be abused. Substance abuse has been around since the beginning of time. In fact the only thing that has changed is what substance is being abuse. When Oxycontin first came out it was rarely prescribed. Then the makers of the drug came up with this bright idea to tell doctors that this a great a drug to give anyone who needs pain meds even for a short time since they would only need to take the a pill twice a day instead of every 4 hours. The more that ended up in homes ended up being abuse by teenagers. Then you had the pill mill doctors who would give you 90 pills for a hang nail. Today almost every state has a drug monitor program so I cannot image a addict getting very far doctor shopping. Some of us may see these addicts as terrible people because they have screwed up are ability to get needed pain medication. Drug addiction and alcoholism is a disease just like MS or diabetes or depression. Those who do not know someone who has the problem or does not have it themselves find it very hard to understand. "Why don't you just stop drinking or drug" is the first question most ask. I asked that question to myself over and over as I saw my dad lose his marriage, hundreds of thousands of dollars of rental property, his respect from others and for himself because of his drinking.The last time I talk to him he stated that he would be at my high school gradation. Like usual he did not show up. As the years went buy I did not get one call or letter from. 7 years after I last talked to him I got a phone call from a county hospital in FL. I talked to the nurse who was taking care of him before he died she stated he had lost all his teeth, weight 95 pounds and was homeless. His pride and denial was so great that he was unable to ask for help. He lost it all at 53 years old. Today while pain patient are having a hard time getting the medication they need the opiate pill addicts have moved on to the stronger, cheaper, easier to get heroin. The war on drugs will never end nor will the emotional pain and suffering that the addicts family and friends deal with as they watch loved one bury there own grave right before there eyes.
  • TarenTTaren Posts: 525
    edited 04/10/2014 - 1:51 PM
    Naaa, not @ all MSG, I'm not easily offended and its even harder to make me mad. So, no worries there. Sometimes it get's hard know for sure how to take something someone said, especially when its all typed-one cant read emotion from just typed words. Maybe one day tho lol.

    Ok, gotcha on the surgery, I couldn't remember. Very understandable with all those blood clots you get in your lungs. Is there anything they can give you before surgery to prevent the bloodclots from happening, I wonder?

    I'm familiar with prednisone, I was just weaned off it. Thank goodness. The prednisone is why you are not a size 0, I assume? I have seen what it can do to one's figure. I was only on it for 2 months but gained 10 pounds, I have lost it after going off though. Is there a chance you could ever be weaned off it completely?

  • Hey guys, this is a great conversation! I don't think anyone's getting offended. We all know we're all in pain & typing fast, sometimes things don't come out exactly the way we mean them too but were all sensitive, compassionate & intelligent people in this chat. ;-)

    MSG.. When I said kick backs I was talking about this particular doc in the movie! They give him $1000 for an appointment & he writes whatever they want! How is this still happening?? Those poor people. It's a harrowing documentary. :-(

    I think in both the USA & UK we need a major attitude adjustment when it come to addiction & depression. There is such a lack of understanding & compassion. Sometimes I wish I could be hard as nails & say 'just stop!' or 'snap out of it' but human life is so much more complicated than that. I don't know what the answer is but the war on drugs is a joke. Once people have lost everything there's nothing left to loose. Compare the money spent on the drug war too the budget for rehab & care!! Many of us have experienced depression so there's a greater sensitivity to that but there are still many here who don't get the help they need. Why is there such a stigma? It's not weakness, it's a brains reaction to life's turmoil.
    Osteoarthritis & DDD.
  • MSGMSG Posts: 296
    edited 04/11/2014 - 6:57 AM
    First off, I'm sorry that you lost your father, & especially that you went through so much pain growing up. I know a little of that from my own childhood. You bring up many good points about alcoholism & drug addiction being a disease, just like any other. And yes, I think we do a lot of "addict bashing" because it does make things harder for the non-addicts. And I think we can almost liken the question "why can't you just stop drinking or taking drugs" to "why can't you just stop being in pain all the time". Different issues of course, but how many of us have had a family member ask us this question, or how many of us have asked it of ourselves? There is just no good answer. It's an impossible problem to fix.

    Taren, I have had a couple of mild surgeries since my blood clots (most recent, a breast reduction in February). They load me up with all kinds of drugs to prevent the clots, & there is no such thing as "out patient" surgery for me, I will always have to stay at least 1 night for observation. But I am considered very high risk, & some Dr's will refuse to do surgery on me. Also, in the case of back surgery, I'm guessing that the Dr. was thinking this is not the kind of surgery you just pop out of bed & start walking, & the longer you don't move, the greater chance of a blood clot.

    Ahh, prednisone. Not trying to brag or anything, but I consider myself an expert on the drug, after taking it for 30 years. I did a topic called "Prednisone", because I know some people take it, & I just wanted to share my experiences with it. I'd like to blame all my weight issues on it, but I can't. Age, 2 pregnancies, poor diet, lack of exercise, the usual suspects. But prednisone does certainly make it harder to lose weight, but it's not impossible. I just need to work harder at it. It's pretty unlikely I'll ever be able to come off it (I talk about that in my post), but at least I'm fortunate that I'm on only 10 mg a day, which is considered pretty low.

    I enjoy hearing different points of view on different topics (it keeps my brain from going completely stale :), & while it is sometimes hard to read the "tone" of posts, I think 99% of the people are able to get their point across without being rude or disrespectful.

    Edited to remove inappropriate remarks.........by Sandi The moderators reserve the right to delete any messages deemed inappropriate without notifying the author
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 04/11/2014 - 11:02 AM
    MSG Have you felt a reduction in strain & pain in your back since the surgery in February? I'm assuming that was one of the reasons you had it done.
    Osteoarthritis & DDD.
  • Yes, that is the reason I did it. It hasn't helped much, but at least I'm "perky" again :)
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • Did the doctors know that you were self medicating with alcohol? Or share the history of addictions in your family? I know that many doctors won't offer pain medications to anyone who is using alcohol or has a family history, because the dangers of giving opiates on top of alcohol are extremely dangerous.
    I am not wanting to offend you, but you have been very open about the use of alcohol to self medicate here, so if you were as open with the doctors, that may have had a lot to do with why they didn't use opiates with you.
  • i know when i go to a new doctor, no not a pain doctor but a vascular surgeon, on the questionaire is the question, do you abuse drugs or alcohol or is drug abuse or alcohol abuse run in your family. every one ask that question. i wonder how many people lie when asked this? if caught, the doctor will or can drop you in a heart beat for lying on your application. it is the same for a work application also. never lie about this stuff. put down yes but i will be willing to discuss this at the interview. when i worked with workability program for disabled students or patients, this is what people were told to write down. but never never lie. same with a pain contract. if lying or exaggerating, the pain doctor will drop you in a heartbeat. he will not be willing to treat people who lie. lying is the worse thing one can do with respect to doctors, work or the police
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • I was having a chat with my doctor (GP) & he said that narcotic pain meds are contra indicated (not sure that's the right phrase) should not be given according to very latest info, to those with fibromyalgia. I don't have it, so I've never looked deeper. If he's been given this information you can bet other docs have. This could explain why some who have unexplained pain in different areas of the body are being denied certain medications.

    This information could be wrong. I haven't researched it. I'm just saying my doc wouldn't prescribe narcotics if fibro is possible.
    Osteoarthritis & DDD.
  • Your doctor is right, fibromyalgia is thought to be a nerve pain problem, so the drugs used to treat neuropathic pain are the ones strongly recommended for use to treat that type of pain, along with some of the anti depressants......some doctors will only allow a very limited use of opiates once in a great while for flares but usually those are limited to a few days, and not very often.
  • If the doctors were aware that you were drinking to cope with the pain, that may have been why they didn't give you pain medications.......and while I do understand why you did it, it sends up the self medicating flag. It may be that with the diagnosis of fibro, then coupled with the not being sure of what is causing you to have the pain levels you do, is part of the reason why they didn't treat the pain ?? I am just guessing, and it doesn't excuse everything you have been through, but if I were you, I think that I would ask them why they didn't offer treatment for the pain during all of this.....especially when you asked for something. I would be interested to hear what their reasons were.

    I hope that this doctor does something to help manage the pain , now that you do have the diagnosis, and you can start feeling a whole lot better ....
  • I'm with you, the absolute worst thing is not knowing what's wrong with you. I have so "been there, done that"

    Besides living with chronic hives for 30 years, that the best the dr's can come up with is that it's autoimmune, I developed what was thought to be a really crazy disease in my my 20's called Familia Medeterrain Fever. I'd be shocked if anyone on this board has ever heard of it, it's really rare.

    Symptoms were that I'd wake up in the middle of the night with horrible pain just under my sternum. ER tests showed an elevated liver & white cell count, plus a fever up to 104.5. This happened several times over about a year period, & I would end up a guest of the hospital for up to a week at a time. I ended up staying in a toxic relationship because I was afraid to sleep alone.

    The dr's were baffled, & put me trough the ringer with tests. There wasn't an orriface in my body they didn't stick a tube in, looking for a cause. All tests came back normal. I was so young & so scared, & the pain would always come from nowhere in the middle of the night; I became terrified to go to sleep!

    I remember after the 3rd or 4th time asking the dr if this could be stress it all in my head, because I was more than happy to see a psychiatrist if it would just go away. He looked me straight in the eye & said "absolutely not!". He explained that pain can sometimes be in people's head, but there was no way an elevated liver & white cell count & high fever could be psychological.

    So through process of elimination, they came up with a diagnosis of something called Porphia. Another very uncommon disease. I was sent to (one of the few in the world) specialists at that famous research hospital in CA (go Cardnials!). So the porphyria dr.said it wasn't porphyria, but FMF, put me on a drug called colthrozine, which many people with gout take.

    There were no blood or or other tests at the time for FMF, the drs came to this diagnosis through process of elimination. I took the drug for a year or so, & the episodes pretty much stopped. I quit taking the med eventually, because I felt like why take a drug for a disease that drs weren't sure I actually had.

    So years go by, & I don't have any more problems with this until..,,,I'm pregnant with my 2nd child. Back to the ER, where I learned the hard way I was allergic to dyladud. Only this time, besides the other symptoms, my blood pressure hit the floor, & I had some heart irregularities. But since I was only in my first trimester, I couldn't be in Ob. They put me in the cardiac unit, where the nurses wanted nothing to do with me, cause I was pregnant.

    Since I was 37 when I was pregnant, I did an amnio. Those who have had them know that you go through a long process of answering health questions. I explained about my FMF, & at this point there was a special blood test that could be done to check for it, & I was excited to have it done, so I could have a definite, confirmed diagnosis, rather than one that was occluded through "process of elimination".

    Guess what? The test was negative. So did I have FMF & it disappeared, or was it something else entirely? And if it was, could it come back? Nobody knows. I don't think about it much, because it's been so many years, but in the back of my mind I know there is a possibility it could come back.

    So I know all about feeling like you might be crazy because nobody can figure out what's wrong. The prognosis on my back issues may not be all that great, but I'm so grateful I got a diagnosis.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • anelsen15 said:
    Well sandi could be a factor but that was after repeatedly being denied so I said it as last ditch effort hoping they would see narcotics as more of an option than drinking to control pain. Who knows why my gut has it's own beliefs but may be deeper than that. I'm not sure these drs even understand the disorder fully, but my PM suggested CRPS long ago and still offered nothing but an injection to brachial plexus if it keeps getting worse so I still don't fully understand, it was as if he was waiting on a dr to formally say CRPS before helping. I saw this with old PT to , saying I can't really help u until dr tells me exactly what's wrong. Teaching hospital PT was not nearly concerned with diagnosis by drs vs what he feels during testing

    I understand Aaron, like I said, I was just guessing/wondering at what their reasoning might have been.....the diagnosis of CRPS is a different animal and while some of the medications used are the same in some respects, the treatment for that is a bit different, and involves several different methods....having been through Reflex Sympathetic Dystrophy as it was called then, now it is called CRPS, things have developed and changed over the years in regards to what was thought was the best option for interrupting the pain signals and not making it worse....so I can see why they would have held off until it was confirmed first in that situation.
  • there are a lot of people on here who have confirmed back issues & fibro. So if dr's don't want to give pain meds for fibro, but you need pain meds for your back issues, where does that leave a person?
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • which is why I would be asking the specific doctor why they opted not to treat the pain with medications.......each doctor might in fact, have a very different opinion, and reason for why he chose not to use opiates, and all we can do is guess at what that reason might have been.
Sign In or Register to comment.