Hi my name is Dawn, I live in Cleveland, OH. I'm 46 and work as a nurse. The irony is I work on a Neuro unit!
My high school scoliosis (watch and see) has progressed to the point that it's taken over my life. For 8 year I had on and off problems that PT always helped. Not now; pain, numbness and weakness are constant. So I gave up on denial and started getting testing done and went to see a neurosurgeon. She wants to fuse me from T 9 to S1 and then fuse to my pelvis. She wants to do this with the help of an ortho surgeon and would do an A/P approach. I have a follow up appointment on Friday to work on the details.
I do nothing but lay on the couch/bed to recover from work so that I can go back to work (3- 12 hour shifts). I have an awesome family that makes this possible. At work my coworkers make it possible for me to take it easy (as much as possible). I'm so thankful for the people in my life! They have been so supportive. That being said.......
There is no way for them to truely understand what my life is like in this 'broken' body. But here I know I can say something and not have to explain it in detail. Why do I stand up, wait, and then walk? Because I'm not sure if my legs will work! Why don't you run, golf, garden, etc any more?
I have read and read everything here. It makes me both more nervous and less nervous at the same time. But the best thing is knowing I'm not alone! This is a crazy journey with ups and downs. Thank you all for sharing your stories. It helps us newbies know we're not the only ones!
So that's me and a brief overview of my journey........
Thank you all for being here,