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Being Patient

Well, this post is to vent, and to have others get out their frustrations with the medical field. And hopefully some one has advice.
Dealing with chronic is hard enough without having to throw in the everyday (yes, literally everyday) problems with the doctors, nurses, insurance, pharmacy, and other issues that I can't even believe have come up. I've lost enough.I am in constant pain and have so many issues with everyday tasks that I can't even work.
What is prompting this is my experience today at an appointment for an MRI. My doctor's office set up the appointment, and also made arrangements to have a rep from the medical company that manufactures my pain pump. Well, they were SUPPOSED to do this, but they didn't. The MRI tech stated that I was supposed to go to my doctor, and I told her no, a rep is supposed to be here to reset the pump. Really, an absolutely needed step, due to the MRI possibly altering the rate that someone gets their pain meds at. As in, if it altered by the MRI it can deliver an overdose to the patient. After I call my doctor (on my cell phone, because the MRI tech was looking up the same information about the pain pump I just told her) they tell me I will have to reschedule the MRI, and hearing this, the MRI tech request my phone, and talks with the nurse insisting that I need to go their office and I can have the MRI today. So, after they get off the phone, the MRI tells me I need to reschedule the appointment, call my doctor's office, and call the med rep company. You know the expression "straw that broke the camel's back"? I stated no, I am done. This is an issue that your office needs to work out with the other office. I am a patient, and I am at a barely functioning level. And then it stopped-others were finally helping me.
I have some amazing doctors and nurses. I don't know how they do what they did while caring for me. People going above and beyond- I am not saying the medical field itself is awful. I'm saying that I kept running into the few bad apples in the bunch, which is going to happen due to all the doctors I have had to see.
One last thing- please don't put any judgments about anything I wrote in here. I don't need to hear that I handled something badly. I need help, not another issue to deal with.
2000- spinal fusion, complete spine due to scoliosis
2012- pain began, started treatment for chronic pain
2013- install of pain pump, procedures to address complications
2014-blood patch, spinal fluid leak


  • I have organised a lot of big events and small ones in my time. I learnt that you have to double check and triple check even for EVERYTHING. No one speaks to each other any more, before the wonderful technology we have, people had to communicate. I have just double checked my appt tomorrow. I know it sucks but that's life.
  • Yes, I know. It has just increased due to adding more doctors, testing, therapy,etc. I usually check everything, but this I didn't even think to. Maybe we can become event planners. ;)
    2000- spinal fusion, complete spine due to scoliosis
    2012- pain began, started treatment for chronic pain
    2013- install of pain pump, procedures to address complications
    2014-blood patch, spinal fluid leak
  • thoracic spine painthoracic spine pain Posts: 566
    edited 04/29/2014 - 3:02 AM
    Used to be my life, don't wanna go back there. Hard work, your post started me reminiscing today about the things that have gone wrong - I was speaking to one of the speakers before lunch - he had to go to a Drs appt and said he would be back. He didn't come back so I had to ask a girl who was his assistant if she would speak. She was very quiet but she did speak in front of 300 people off the cuff and she was wonderful. Turns out he went to the Drs and had a heart attack at lunch time. He could have waited to have a heart attack until after he spoke , just joking, would have been worse if he had it in the middle of speaking.

    Another time a guy was a speaker and I had called him and sent formal invitations about 6 weeks prior - got the email back saying yes, sent him the program, dates, times, place, maps, parking etc, called him 2 weeks before, called him 3 days before, called him the day before and they said he had gone on holidays. Trying to get another speaker in a specialised field in one day - the programs had been printed - unbelievable. How could he forget he was going on holidays 3 days before he left? Loved that part of my job, NOT, after years of contingency planning for every conceivable problem there were still things out of left field.

    One opening speaking was late - the sole had come off his shoe that morning and he was racing around to try and get it fixed. He just made it before I made an announcement - he ran down to the stage and gave the opening address. I asked him what had happened and he told me and we both killed ourselves laughing. He was a VIP I had known for years.

    An interesting thing I noticed was that the more important a person was, the more lovely, gracious and self effacing they were. The people who were difficult, arrogant and self important were the people who didn't have much power and the little bit they had, had gone to their heads. They certainly weren't the VIP's.
  • Being a patient, I just get excited when I get a whole month that I'm appointment free!!!! I hate being a patient, I wonder if it's too late to get another starring role in life???
  • thoracic spine painthoracic spine pain Posts: 566
    edited 04/29/2014 - 4:28 AM
    You should come and be a speaker on spine. Least you'd turn up.
  • Great idea Taren! We could start a spiney 'Cirque du Soleil', The Slowest Show on Earth! Maybe a rousing Stomp rendition with our walking canes! Jon would be our stand up comedian & male model & we could produce all the artwork!
    Osteoarthritis & DDD.
  • Lol, GREAT IDEA, English, I'm on board!!! I could sketch some pictures of Jon so he has some pictures to autograph for his many adoring fans ;-) Maybe the "rousing stomp" could be a version of a rain dance--spiney's w/canes dancing in the rain!!! "Cirque de Soleil" it is!!!
  • i am the preverbal chick magnet. as they say yo soy uno macina de amor y yo soy muy guapo y intellente. es verdad? si muy verdad.
    adios senorita
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
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