I just had ACDF of C5, C6 and C7 on Jan 31, 2014. I had an episode of INTENSE pain after surgery which resulted in me being Medivaced out of town back to Neurosurgeon, who basically asked me why are you here? Said I already looked at your scan and you are fine. Told me to start doing certain things---followed up with the PA of the neuro a few weeks later who contraindicated EVERYTHING the Neuro said. I was also told by hospital staff neuro's contract would not be renewed. I have been experiencing almost constant pain since the surgery with bouts of INTENSE flares of pain deep seeded in my neck. My shoulders are excruciatingly tight. My PT has consisted of trying to loosen the muscles and some small exercises to improve my range a bit. I cannot look up or to the left without knife sharp pains stabbing me. I am so ready for this recovery that everyone keeps telling me I will have. My regular doctor left the practice and was not too encouraged by the neuro's work from what I could tell. I am going to have a complete second opinion and outside set of eyes look at my neck again and see what they say.
Post surgery I had more numbness in my right hand than I had prior to surgery and that comes and goes in intensity. I put a collar back on the past few days to help a bit, at least try something.
The pain wakes me in the middle of the night and I am crying in my sleep from it--I literally wake up crying. I hate asking for pain meds and would RATHER I not have the damn pain but this pain is intolerable. I suffer from chronic pain from an autoimmune condition anyway so my pain tolerance is really high as it is. The pain meds provided offer LITTLE in the way of pain management and I am completely frustrated with my life quality at the moment.
Quite a few people I know woke up feeling grand--far better than they did before and I just pray that I can get to that point. I am back on my chemotherapies to address my autoimmune. Tired---hurt and beat down. Guess I just had to share with someone who might understand. My husband works away for 2-3 weeks at a time and sometimes is only home for 6 days (hopefully 13 days this next time). But I feel alone. He went with me to the clinic and said to them that he was NOT going to go work on the Arctic slope with me in this much pain--and he NEEDED to go to work so they had 2 choices, either treat my pain or get me to the surgeon the next day. By the way I live in Alaska.
Try to keep smiling and doing but oh sooooo tired of intense pain battle---tired. I hurt and know it doesn't define me but it sure does change things.