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we cant read mri results

terror8396tterror8396 Posts: 1,832
edited 05/12/2014 - 5:53 AM in Chronic Pain
maybe i sound like an old party pooper or a fuddy duddy, but it seems that a lot of times new posters will post their mri results which are in doctor speak and ask members to interpret them. besides not reading the forum rules before posting, does it not make sense that we do not know what this stuff means? i have a lot of science and biology background and i was going to be a dentist before a teacher, no pain jon was my nome de guerre. i cant read what they mean. why do new people think that we can read this stuff? i guess i am being picky but it seems that a lot of new posts ask us what their results mean and the moderators and members have to keep saying we cannot read these or interpret them. we are not doctors and it is against the forum rules. so if i am being picky, i guess i am getting old albeit still striking and debonaire. anyway sorry if i rustled a few feathers but it is getting old to me. sorry. please dont ask us to interpret the results. we can't do it
I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.


  • TarenTTaren Posts: 525
    edited 05/09/2014 - 4:41 AM
    I was thinking of making the same exact post yesterday, but where do you put it so that each new member, when they join, will see it and read it before posting??? If they would JUST read the rules they would see it but I guess no one reads them before making they begin to type. I see this being a problem forever. Another thing are those long long long first post, new people make. I start reading them & most times will just skip to the bottom or end up skimming through the post to try and get the gist of their story...Post that begin from birth and go from there to "today" don't hold my attention, I usually don't respond to them.
  • When I finally took this spine stuff seriously..I was in denial for a long time..I took my MRI summary & searched every bit of it. Yes, my doctors took me through it but that was fast & didn't all sink in anyway. If anyone reading this wants to know exactly what every word means 'search'. If its 'normal' or 'minor' leave those bits for last. If its 'advanced' concentrate on that! Nearly every word is actually explained on this site. You don't even need google. Use the search box at the top of this page.

    I do understand why (despite the rules) people come here to ask. I was a very placid patient, it took me a long time to realize that I had to own this. It's part of the chronic pain journey. I'm lucky, I wasn't desperate or scared when I joined here. I'd been lurking for a while, just enjoying 'listening' to you guys chat & finally wanted to join in. If I'd come here a couple of years ago I don't know how easily I would of fit in. I was very lost & confused. Let's stay patient with newbies guys.
    Osteoarthritis & DDD.
  • anelsen15 said:
    Jon I cannot look at film and read scan but I promise most long term people know about what the terms in the radiologist report says. it's a click away so while I don't think anyone can read the films , I think people can and should look up terms on rad report instead of ask others to do it
    This is so true Aaron!!! It's so simple to look up these words and put them all together to figure out what the results mean....I have done it, you have done it, many many others here have done it--they can do it as well. This is exactly how I have educated myself with all this stuff, it's not that hard to do, just can be a little time consuming....maybe that's it, it's just easier for us to tell them what it all means so they don't have to do the studying themselves....Educate yourselves newbies.....Look it up, read, take notes, put it all together and then come here and TELL US what your report says...Wouldn't that be a nice change of pace, lol???
  • Here's one....How about talking to your dr. about what it means??
  • all they have do is read the rules. simple. and it is obvious that no one here can interpret the results because we are not doctors. why do some think we can read their mri reports when i have no idea what 90% of that stuff means. I do not even know what half of the diseases people have mean. if i want to know i have to look it up. also taren you are correct, keep the first post simple and to the point. writing a term paper just makes me want to not read it. just a simple paragraph, 5 sentences in concise form will be good. but a 5 page discourse on ones problems and problems with doctors and meds and the history of your family that goes back 5 generations. i am just exaggerating but it seems that way. just a short simple paragraph will do.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • I usually hurt so much in the docs office. I'm so bloody English! I never have the courage to get up & move..I perch on the edge of the chair with one hand under a bum cheek, desperately trying to concentrate but starting to feel pale & sick. My surgeon walks with me along the corridor, back & forth while we talk. Why do I keep being 'polite' at other appointments?!?

    Just ranting ;-)
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 05/09/2014 - 6:07 PM
    Ha ha ha! I just found it funny that a teacher said he can be bothered to read term papers! I know what you mean ;-)

    Newbies..use the new members introduction, then give us your problem & question on the forums. Sometimes I don't even know what people want to know? My only response could be "Sorry, that must really hurt!". ;-)
    Osteoarthritis & DDD.
  • dilaurodilauro ConnecticutPosts: 9,863
    and when a person registers for Spine-Health one of the agreements they make is to read the forum rules.

    I am not going to be naive and think that 100% of the new members read all the rules. I believe if 25% if them do I would be happy. But what happens when a member does not read the rules, the wind up violating a forum rules, they get a warning and then they feel unwanted.

    Guess its the same when you get your driver's license. You took both the written and road tests to get the license. Then you go out and get a ticket for speeding. Whos fault would that be?

    But I also understand when new people register for this site, they have either heard it from a friend, searched the internet, but they are looking for answers. So the first thing they will do is ask their questions without reading the forum rules and FAQ. I wont ever ban a new member for violating the rules when they first join. Yes, if they do the same after a while, they are subject to banning.

    It would be nice if there was some place you could plug in all the words from your MIR image and out comes the formal diagnosis. Aint happening - at least for a long time and probably well beyond my lifetime.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • and MRI and CT scan are open to various interpretations .some radiographers may see something that another doesn't see{or determine as important } what may be a serious problem to my MRI scan may not be on another persons ,i think that many of us old hands can read an MRI scan but we are not allowed to express an opinion on alive forum we could get it wrong and fill someone with hope or sadness !! ..remember medical photographic imaging is only a part of a full diagnosis and don't get too elated with a good or bad result other things like bloods and the health and previous history all go in to the final analysis and treatment .thats why we have health specialists ..and its fair to say they dont always get it right ...do they !!
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • sandisandi Posts: 6,343
    edited 05/12/2014 - 4:04 AM
    questions.........there isn't any need for members to respond to inquiries, you can still say hello and offer support without having to respond to questions regarding their tests. Let us handle that part.......

    All of you must remember what it was like, to have the report in your hands, not knowing what anything meant but waiting to return to the doctor for them to go over it with you........and then they do and you still didn't understand.
    There are some big words in those reports that just by reading them, are enough to scare anyone, without knowing what they might mean.....so a little understanding and compassion go a long way.
    We were all newbies once, weren't we?
  • I remember my first scan I needed to be sedated !! {but after nearly 18 years of prodding and poking by various medical personnel you get almost desensitised to it ..I have lost count of the MRI /CT scans and X Rays and gamma camera test that I have had over the years ..infact I am in hospital for an operation next Monday 19th may 2014 .not on my back but as a result of the last back operation !! .even now when I think about it I get butterflies in the stomach but its a small operation compared to the others that I have had .but I have still had the worry of scans and blood test .I said you get desensitised but when the day comes nothing can stop you worrying ..if its in your nature
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
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