Hi my names Jo or Joanne. I live in the uk, ok a bit about me in august last year I had uncomfy pain in my ribs followed by chest pain which was confirmed as being from my neck, then went straight on to have a 5 week period of vertigo which I was told an inner ear infection but I now suspect was caused by my neck.
After having acupuncture to help with the vertigo I woke two nights later tingling from head to toe. The next day I woke with spasms in my legs and feet, terrified I rushed off to the accapuncturist thinking this was the cause. I then went to gp who handed me anti depressants,
Role on a couple of weeks with no sleep, crazy sensory symptoms and terrible leg spasms, I was finally referred to a neuro and had brain MRI which was clear.
The neuro I saw I have to say lacks bedside manner and straightaway said my symptoms were stress. Had a clear spinal MRI this year and the neuro referred me to a neuro psychologist who after evaluating me told me he wouldn't yet treat me as he wasn't 100% sure it was stress
Symptoms had calmed until 5 weeks ago when I developed the worst lower back pain I can describe, similar to labour pain. It also affected my bladder, my pelvic area and hips hurt a lot and my legs have nerve pain. Sometimes my pain is so bad all I can do is cry. I am on a cocktail of meds that do help though
I was referred for a second opinion and saw the neuro last week after an anxious 4 month wait. I self picked him as he has a good reputation.
After asking a few questions, doing my reflexes, reviewing my previous mri scans, he diagnosed me with chronic pain syndrome. His explanation was that my nervous system has fired up and this happens to many people, due to the nervous system being so complex there is no known cause.
I've been referred to the pain clinic and just waiting for my appointment now.
Has anyone else on here got this diagnosis? Would love to hear from anyone who has. At present I'm finding this diagnosis difficult to accept but perhaps it is just something I need to accept.
Sorry if my post is a but long, I could go on all night as I'm guessing most people could.
Currently trying to work out this website so I hope I am able to log in and see replies if I get any, all the best Jo xxx