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It's official.

Ive seen my rheumy today, and the diagnosis is in. I officially have Ankylosing Spondilitis. It's been one of the roughest days of my life. Im happy that I have a diagnosis but im at the lowest of all of my lows at the fact that I will never get better, and that I have a chronic scary disease at 25. My rheumy said my MRI showed that the progression of the disease so far is moderate to severe so Im a bit scared. Ill be starting the drug Enbrel soon as long as my insurance approves it, (im terrified that Ill be injecting myself in the stomach weekly :( ) has anyone had any experiences with this med? Im terrified of it because its an immuno-suppressent. Any info on AS or Enbrel would be greatly appreciated. THAAAANK you!
(12.24.13) L2-L3 Laminectomy, Discectomy and Coflex insertion. DX'ed with Ankylosing Spondylitis on 5/13/14


  • Thanks anelsen, so do I. I can just be glad we found it when we did and its not any worse than it already is.
    (12.24.13) L2-L3 Laminectomy, Discectomy and Coflex insertion. DX'ed with Ankylosing Spondylitis on 5/13/14
  • Jesse, I'm sorry to hear this but as you say, now that they have figured it out they can figure out a treatment plan for ya & hopefully, soon, get you to feeling better. I feel bad for all the pain that you must be in with this. I can't really give you much advice on how to handle this, but I can tell you that giving yourself a shot in your stomach is nothing, I do it several times a day with insulin, as well as in my thighs and arms. To make it easier for you to do at first, you can pinch up a chunk of skin & inject, you wont feel it this way. Pretty soon though you will just be able to inject w/o pinching skin, it won't phase you :-) Also, the needles have very fine tips on them which makes it almost painless to inject. You dr's or nurses will show you what I mean by how to do it to make it painless until you are use to doing it. One day at a time, One hour at a time, One minute at a time and if necessary, One second at a time :-)
  • Thanks Taren, its just so much to take in today, and soo many emotions as well. closure & being terrified at the same time. I have nooo idea what to expect with this disease, I had never heard of it until my dr mentioned it a month ago..I guess ill learn soon enough..
    (12.24.13) L2-L3 Laminectomy, Discectomy and Coflex insertion. DX'ed with Ankylosing Spondylitis on 5/13/14
  • Think of it this way new treatments are always been developed for different diseases...and even cures
    So try and stay positive, easier said than do I know, but least its treatable and hopefully you will feel a lot better soon once treatment is underway.:)
    Facet joint Arthritis L3,L4,L5,DDD.
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