I have had a neurostimulator implant now for close to 8 years and its just not working for me. I used it regularly for over a year and had it reprogrammed several times in that year. It eventually did not cover my pain or reduce it any and became such an unpleasant sensation that I turned it off and only tried it intermitently to this date.
About a year ago I visited a neurosurgeon who reccomended I try to have it reprogrammed again which I did. It still no longer covers my pain and gives a very unpleasant sensation. I can get it to cover my pain areas but I have to turn it up so high that it impairs my ability to walk and have urinated myself because I couldn't tell I even had to go to the bathroom. I have not used it since. The neurosurgeon reccomended I have the unit removed so I could at least have an MRI in the future and stated I probably would not benefit from a newer unit even though the technology has imoroved. He talked about a pain pump as an alternative and that's where I have left it.
I haven't seen a forum thread here related specificly to pain pumps and I would really like to talk with some people who have one. I currently take oral pain meds and have a pain management doctor that I visit monthly. Honestly the pain pumps scare me, but that's probably due to the lack of knowledge that I have of the whole subject.
Another major issue is that I currently have no medical insurance and I'm paying for all my health issues out of pocket. There's really no way I can pay out of pocket for the removal of my current unit and a pump install. I'm not sure even if I were to pay for my own insurance they would even cover such procedures to it being a pre existing condition. I'm fairly overwhelmed by all of this and need some advice as how to proceed, just to help sort out the thought process a bit would be a great help.
If anyone has some wisdom they are willing to share it would be greatly appreciated.