Hello everyone, I am scared to death and I don't know what to do. I suffer from a rare malformation in my upper spine called Chiari Malformation and it caused sphyrinx or cysts to form on my spine from the accumulation of spinal and cerebral fluid to build up and put pressure on my spine and nerves in it. It is extremely painful and I am going to have to have neurosurgery to fix it in the next 6 months. The pain has completely ruined my life and caused a lot of stress for my family.
I am currently on 75mcg fentanyl patch and have been for the last 7 months to help with the pain and enable me to work and be out of bed and not miserable. Two weeks ago my doctor in PM went on vacation and before he left said that that I would be taken care of by another doctor filling in for him. I am on my last patch and have been trying to get a refill from this doctor but he will not do it because he said he does not know me and in my file the last doctor I had before my current one suggested that I be weened off of this medication because I was one patch short. I had told this doctor that one had Fallon off and I lost it wich is the truth and I went one day without my patch to make up for it. She accused me of abusing my medications and put it in my chart that she thought I was and I should be weened off. My current doctor thought that was ridiculous and said we are continuing my opioid therapy and that was aty last appointment with him before he went on vacation. At this appointment he had sent me to the ER for some emergency MRI dye to new and worrying symptoms I have been having. He forgot to put in my chart that he was continuing to prescribe my medication for the extreme pain I have.
The nurse that was there knows all this and she told the doctor standing in for mine this but he doesn't care and said if it is not on paper it didn't happen. The nurse also told him that my doctor just made a mistake and didn't write down that I was continuing my medication. I even signed a new opiate therapy contract that ya with him.
I don't know what to do, I have 2 days left on my patch and then I'm out and will be in terrible pain on top of withdrawal and can't get anyone to fill my script. I feel like I am having to pay for my doctors negligence and it isn't right. I will not be able to work and have missed a lot of work latley due to pain but I don't know if they will be ok with me being gone as long as I will if I have to go through this. Please if anyone had any ideas or thoughts let me know. This has been do stressful for me and my wife and I'm ready to give up.