Hi, my name is Mike. I am 38 now. When I was 14 I had reconstructive surgery.
I was born without eye or ear on left side. Surgery was to take out rib 6,7,8 cartilage to build the ear.
About 3 years after surgery I suffered my first accident, a severe hernia, and then another.
I suffer from constant pain in my entire thoracic region on the right side of my body where the surgery took place, also behind my scapula, which I am assuming is the rib area that connects to the ribs in question. And my lower back is very weak.
I had my surgery at John Hopkins. They have since lost my records in an office move about a year after my surgery???
Anyway, I have been to several therapist, and I own about every gadget known to man to help relieve pain in the back and stomach muscles. I eat health, and exercise as I can.
Studying on my own for years about the body and anatomy to better understand the damage I am facing, I have come to learn my body is out of balance in a severe way. My stomach muscles on the right side will never develop correctly, thus leaving me structurally compromised in the thoracic region.
Of course I have tried different pain meds, and have stuck with only taking tramadol on a daily basis, as that seems to allow me to not feel as much pain, and allow me to work every day etc...
The reason I am joining up here, is after so many years of fighting this by myself, I decided to try to find a doctor that might take kind to me and help me learn more about my body, and maybe even find a solution.
Currently, when I have to go to the ER or Urgent Care, I am looked at like a druggy, and they simply prescribe pills and off I go. That is not patient care to me, and I have to hold out hope that people still care out there. Yes I take medication, yes I am dependent on them, but I am not addicted, nor do I have an addictive personality.
I am just looking for a kind ear and maybe some knowledge to reflect on.
THE ONE BURNING QUESTION I HAVE RIGHT NOW
Knowing that eliminating the rib cartilage of rib 6,7,8 will leave the thoracic compromised, and in my case severely it seems, would a physician do the surgery to a teenager to simply fix a superficial issue? Yes as a teen I wanted to not have long hair all the time, but I had to to avoid getting picked on. However, as a responsible physician, wouldn't you explain there are going to be long term complications that need to really be considered before proceeding?
As an adult and father and husband, I would NEVER have done the surgery knowing that I have trouble playing with my kids, or have to be worried if I have my meds when we go out of town.
I just want some answers damn it!