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Upper back pain right sided along spine and shoulder blade - 2 years -no answers!

This is my first time trying this, since I have no luck with any of my doctors I decided maybe I can seek answers off the internet. Im a 26 year old female who has been in chronic pain for 2 years now. Well here goes my story....

2 1/2 years ago I started to stuffer mid and upper back pain only when sleeping, I would wake up with horrible pain and have to move around to alleviate the pain. Obviously I thought of the obvious -- bought a brand new temper pedic mattress, changed my sleeping positions, tried different pillows etc.

Over the following months the pain progressed to during the day. It felt at the time that as soon as I would relax I would get this throbbing ache along my spine. Laundry and using my arms would just cause the right side of my spine to become a burning ache. I used to describe this as my spine being like the spine of a book and just felt like it was coming apart at the seams. It felt as if my bones just wanted to fuse together. So I stayed busy moving constantly to keep this pain at a minimum. However im constantly tired and exhausted and laying down and sleeping became a verrrryyyyy difficult task. It is just pure agony to lay down and get comfy.

Around a year ago, all the sudden my hips started to ache. First the right side and then the left. It feels like it runs from the top of my hips around to the back side down my butt.

Now currently the pain has persisted to all day. Sleeping is still the worst and most uncomfortable thing ever. I literally have lived in a world of exhaustion and pain for over 2 years. This is an all day every day thing, I have found no relief and no answers. About 6 months ago the back changed slightly it is still the same but added one more symptom. I cannot turn my head to the left or look down without it pulling on the same spot of the right side of my spine. It feels like an knife in my back every time i turn my head. This has been ongoing for 6 months straight with no relief.

Now heres to what I have had done and what doctors I have seen.

X-rays on my heart and lungs - 2 1/2 years ago -- normal
X-ray on my thoracic spine and cervical spine 2 1/2 years - showed signs of degenerative arthritis
MRI - on my thoracic and cervical spine 2 years ago - came back completely normal (so i guess it ruled out the arthritis)
X-ray on my SI joints - 9 months ago showed mild degenerative arthritis sings
MRI on my SI joints - 8 months ago came back normal ( once again no signs of arthritis)

I have had my blood levels tested for pretty much everything.

NO inflammation markers in my blood at all. All have come back negative.
Rhuematologist tested for Lupus, RA, Anklysoing Spondylitis and other rhuematologist disorders all have been negative.

Calcium is normal, thyroid tests are normal, and everything else has come back normal.

I tried different meds --- tramadol, meloxicam, and cymbalta. None of which has helped. I do not believe nor do my doctors believe I have fibromyalgia because I just dont even fit the bill for that.I have had the same chronic pain for 2 years it doesn't move and I don't have various tender points on my body. Plus the cymbalta did nothing for me.

I have done months of physical therapy, seen a rhuematologist, a pain management specialist, and now i have an appointment scheduled with a nuerologist. Every time I see a doctor i just get the same results.

The only medicine I found to have helped me a little bit is Nuerontin (gabapentin). I was taking 2 of these pills at night just so i can sleep. It was the only way I could sleep. The pain was still there but the gabapentin took the edge off just enough to where i could sleep for about 6 hours at a time.

Now the problem is i'm 9 weeks pregnant. I am not on any medication at all, but i am in such an extreme amount of pain. Sleeping has become the most difficult and uncomfortable task. I am so worried as to how my pain will affect my baby and the lack of sleep I am getting.

All i want is answers as to why i hurt so bad. No event started that, no accident, no fall, no injury. It literally came from out of nowhere and no doctor seems to know why. I am not asking for anything but answers. I literally just want to feel better. This is not normal for a 26 year old female. Chronic pain is one of the worst things I can imagine - it takes the life out of you. And the worst part is, i cant even relieve the pain with sleep as sleep just makes all of it worse.

Other symptoms that I try and ignore are.....

Muscle weakness and cramps pain - during repetitive motions - i.e. - blow drying hair, stirring cookies, using hands or arms over my head just causes my muscles to cramp up and hurt. I cannot hold my own weight without my arms feeling like they have been crushed. Carrying anything of weight for longer then a minute can makes my arms cramp up.

I have been getting horrible headaches and ear pain - tender spots that come and go on my head especially around back of left ear

PLEASE HELP!! I am a mom of a four year old with now another on the way. My husband is incredibly supportive but I also think deep down he could just have a normal wife who doesnt have a body that acts like a 60 year old women. I rarely have the energy for anything anymore. I recently just quit my job because the pain was too much. I'm not out for attention, not seeking disability, not seeking any narcotics, the only thing I want and wish for every day is just same answers and to feel better. All I want are some answers and a diagnosis so I can feel normal. God I miss normal.....


  • Tiffany1213TTiffany1213 Posts: 2
    edited 07/12/2014 - 7:01 AM
    The only thing that come up abnormal in my blood work were my PTH levels. They are low. The cuttoff is 15. And mine were measured at an 11 and then again at a 6. The endocrine doctor has no idea why and says that since my calcium has always been in normal ranges, that this isnt a parathyroid problem. The only thing I can think of is that this is some kind of weird issue where my body is making or not using the calcium in my body. I do not drink milk and do not intake an excessive amount of calcium to where my parathyroid should be so low. But said he since my calcium is not high or low there is no need to be concerned. Weird, not sure if this has anything to do with it. But like I said, every doctor i see seems to be at a loss. I dont feel like im being taken seriously or like anyone is actually concerned with finding out whats wrong. I sit here in soo much pain everyday that i eventually just want to give up. My biggest fear is that I will be crippled by the time im 30.
  • If you haven't had any luck with a primary in getting answers, have you considered that you might want to consult with a spine surgeon to see if a ny of this is coming from your spine and perhaps an endocrinologist since the pituatary gland levels were low.?
    We can't guess as to what might be causing your symptoms, but if I were you, I would start with those two doctors.
  • When I was pregnant I found a fantastic massage therapist. She specialized in pregnancy & chronic pain. I honestly don't know how I'd of survived my pregnancy without her. I've had regular massages & pain specialists, they don't even start to compare to the relief she gave. It's also a good idea to make notes of the things which make your pain spike & avoiding them while pregnant. Grab hold of any little thing which gives you some relief, airomatherapy, stretching, ice & heat & work with it.

    I know it's incredibly hard but I suffer from chronic pain & gave birth to a perfectly healthy little girl. ;-)
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 07/12/2014 - 1:10 PM
    Many people recommended I try cutting gluten from my diet. It didn't help me but it could be worth a try... I'm just trying to think of things you can try while pregnant. ;-)
    Osteoarthritis & DDD.
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