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I'll try to make this as short as possible. I'm a 66 yr old. Woman who has suffered from Stage IV breast cancer since 2002. I worked full time for the State in Judicial Department until certain chemos wiped me out, and I retired on Disability in May, 2012. This past December I developed excruciating neck pain. An MRI revealed a C-1/C2 fracture. The advice was anterior fusion, followed by radiation. At the end of April, I had anterior fusion from occipital to C1-C 4 ( cadaver bone). I recovered nicely for first few months and was not in cancer treatment. I had difficulty swallowing for months and limited occipital neuritis.
On June 3 , I endured 3 hrs of gamma knife ( type of brain and neck radiation), which included being placed in a halo and then surviving separate brain/ head MRIs BEFORE the radiation. I took me days of reclining to get my neck muscles feeling back to what is relative normal. I refer to it as " lockdown", whereby I have 0 head/ neck rotation, can barely swallow or talk. Ironically I have little pain. I have experimented with multiple meds that make me sick, or trigger migraines . My surgeon depends upon my palliative care doctor to find a muscle relaxant that works. Flexeril knocks me out , Valium doesn't work, and since I already take Ativan we are sticking with that. I take time released pain meds for the chemo bone pain, but if I take too much of that I get sick. We talked about bacloven, which she says will trigger nausea which I have with this chemo (Afinitor) , I also suffer from horrible migraine. I found an airplane pillow and lying down is the only remedy for me. Makes for a dull life. If I go out, I have to come home to lie down.
So the bottom line is this, and sorry this is so long: does anyone else experience this??


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