My 20 yr old daughter had 360 fusion L4-S1 in Mid Oct 2013; she got a very deep surgical infection in the back cavity. She had clean out and revisions in November and December. She got a blood clot in her arm from the PICC line used to give her IV antibiotics. Pain control has been very poor. Once they stopped the IV antibiotics and put her on oral she did worse as far as pain. She had become wheelchair bound as pain to severe and many falls.
July 1, 2014, she was 95% fused so they removed the hardware from the back. Infection was encapsulated all over the hardware which was probably still causing all the pain, but it never showed in blood work. Infectious disease says it is now in her bone (osteomyelitis). After this last surgery she was able to walk with a walker, which is better (it give me her mom hope), but still poor pain control. She is also being treated again with the IV antibiotics. After almost dying of this infection, it has robbed her of any hope of getting better. I often talk to her and she is always waiting for her life to begin again, instead of living in the present. She just lies in her bed because it is the only thing that will give her some pain relief. She is seeing a therapist to sort through her feelings. Dr thinks once she starts physical therapy again she will start to do better, but she has no hope in that. I am heartbroken that this has mentally broken her!