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So frustrated, pain gets worse daily, no answers

Hello, I have written before looking for insight. Really hoping for some help understanding things. I'll try to be as brief as I can.

62 year old female with long history of back pain, was always able to get by. In February I started having sharp pains in my lower spine. Felt like center or just to the right. These pains feel like a lightening bolt. They went from weekly to now constantly.

I had an MRI and it showed many problems. My orthopedic felt a pain DR was my best bet. Pain DR started me with PT and an epidural. Pain has increased since then and right leg weakness. Next I had a sacroiliac joint injection. For the first 12 hours pain free. After pain was much worse and now included the left side. Last Thursday I was at PT pain was brutal he massaged only and that was painful. He tested my legs and saw both were weak. Cannot raise from table. He told me to go home and rest and not to do anything until my appointment with my DR today. Yesterday, knowing my appointment was today I decided I should try to do my "normal" activities and some of my PT. By the time I went to my appointment today I could barely walk. Pain was at about an 8 and I was getting my lightening bolts along with steady pain, it brought me to tears. DR still feels my pain is sacroiliac joint related. She did say she was concerned with the weakness and wants another MRI. She wants to schedule a PRP Synvisc/Euflexxa, I'm copying what was written on the paper. But it involves taking my blood platelets, cleaning and injecting into my sacroiliac joint??

I'm so discouraged and concerned at this point. Pain & weakness has increased dramatically since February and I still don't know what my problem is. I'll schedule the MRI but I'm not ready to agree to the procedure without learning more about it. More important I want to know what is causing all my pain. It is so bad I cannot plan any activities. I am totally unable to do more than the simplest of things, making the bed and emptying the dishwasher is a great accomplishment. Please, anyone with similar, thoughts, anything!! Thank you.
Take Care.


  • Hi Margjo,
    I can so sympathize with you, I definitely feel your pain. I just turned 50, and I had an L5/S1 fusion in Sept last year, it was supposedly going to cure the pain that I had for over a year before that. I apparently had a collapsed disc and degenerative disc disease.
    Needless to say, 10 months later and I am still in severe pain. I have had 3 more injections since Jan., two in the S/I joint and one in the L4/L5 area, with the same results as you. Relief for a short period and then even worse pain. I currently see a spine specialist and he ordered an MRI last week. I got the results today and there is really nothing new since the surgery, but the pain when sitting is sometimes unbearable. I work at a dental office and have to sit for 9+ hours a day, but with this on-going pain I just resigned my position last week. I have been in this field for 12 years so it was a very hard decision, but I am like you and just want to get on with my life. Even the thought of a long car ride gets me down, never mind going to a concert, or playing any type of sport. I do my exercises daily and I spent 4 months in water therapy after the surgery, with minimal relief.

    Anyway, I just wanted you to know that you are definitely not alone in your suffering and I'm sorry it gets so bad that you have trouble walking. I love to walk right now, it is the only partial relief I get.
    I am waiting for the dr to decide his next move, but I have a feeling I will probably have to go to another dr for a fresh perspective. I'd love to hear more about the tests that your dr is doing to try to pinpoint your pain. Mine originally said he was going to do a discogram, but then changed his mind and ordered the MRI. He told me that the MRI cannot show if there is a tear somewhere, but the discogram can, so I'm not sure if he will even do that now.

    I understand your discouragement, I think a lot of us on this site feel like you do, and I'm so grateful for this site to help us all not feel so alone in our pain. I hope you find relief soon. I basically live on an ice pack to help numb my lower back.
    Please keep us all posted.

    I pray you can get relief
  • Thanks so much for responding. I talk with friends and family and they just don't understand why I can't find out what's wrong and just get it fixed.

    I have two younger brothers that have had poor results from surgery. It seems to run in the family. It's sad to see how this has isolated them so much. I really don't want that to happen to me. I think I was able to keep my back stable as long as I did because of my preventative approach. I bought a ball desk chair years ago when sitting at my desk became so painful. I highly recommend them. Even for home use, I wish it was higher, I would use it at the dinner table. I had done weights and core workouts.

    Now I sit on my ice as I type. I was up at 3:00 AM doing the same. Isn't it frustrating?
    I can't believe all you have been through and still are trying to find an answer. I guess I was pretty lucky to hold off the real serious stuff until my 60s. It makes me sad when I read of those so much younger dealing with all of this.
    I have my next MRI scheduled for Friday afternoon. I'll have to look up discogram. I really would like a better idea of the cause of my pain and weakness before playing pin the tail on the donkey. That's what I feel like now.

    Good luck to you. I hope you can find some relief. I so appreciate you taking the time to share. It helped me a lot to put things in perspective.
    Take Care.
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