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Chronic Pain out of control...

I have been diagnosed with Chronic Pain. My L5disk down to my L1disk supposedly is so bad that the Doctor has said the disk are almost fused together with out medical help. I live in pain 24/7 it is getting old !!!! I've been told there is nothing that can be done until I lose control of my bowels or bladder. I have recently got to a point where I am having trouble making it to the restroom. Is there anything that can be done before I lose control of my bowels. I am on Oxycodone,Nebumatone,Gabapentine,to control the pain I'm at the highest dose my Doctor said I could go. So am I stuck in this pain,that makes me feel like I can't stand,walk,hold things in my hands do to feeling like my muscles are to weak.Is there any help for me? Does any one have any suggestions? I hurt bad !!!


  • GARY76GGARY76 Posts: 2
    edited 08/15/2014 - 9:50 PM
    Wow you just wrote near exactly what I was going to.I have been suffering with a herniated ruptured disc l5 s1 for over 3 years now.In severe pain 24/7 in lower back,down right leg to foot and goes down left leg to foot if I stand or walk for 5 minutes.I to was told the same that nothing could be done until it effects my bowels or bladder.
    For me though I did not have a family doctor at the time and had to go to the hospital which was a nightmare.
    I had to fight with the doctors to get any pain meds but when they did all they would give was 30 T3's a month which was a joke.I went to a specialist who said nothing could be done and it would heal on its own within 2 years.After 3 months of fighting with the doctors at the hospital to get adequate pain relief and being treated like a lying junkie drug seeker I resorted to buying meds on the street to get relief hoping my back would heal on it's own.This was june 2011.It took me 3 years to get a family doctor and I am still suffering with the pain that has only gotten worse since then but still not bad enough for surgery.My doctor has me on 90 T3's and 90 gabapentin 100mg a month which is useless and does nothing for the pain and my doctor said that I need to be more active to help my back heal lol.I near lost it on her.
    I know exactly how you feel cause I am going through the same thing.You could lie and say you are losing control of you're bowels,bladder to get the surgery but that is not guarantee it will stop the pain.It could make it worse.
    I am looking into ways to get my doctor to adequately treat my pain.There is no law stating how much pain meds your doctor can give you.It is totally up to him which is the same problem I am having.
    This pain is completely ruining my life.I can't perform basic daily tasks let alone work a job which is leaving me to live in poverty.I am pretty much bed riddin. My doctor must think I am lying as I can't believe she is leaving me to suffer like this but I see I am not the only one..
    I am living in hell and the only one who can help won't so I am looking into contacting a lawyer to see what can be done about this.I am tired of doctors putting the cart before the horse.Adequately treat the pain and if the issue that is causing the pain is fixed then worry about any issues with opiate dependency.
    I wish the doctors could experience what I go through everyday...see how quick their tune changes.

    It is not advisable to lie to doctors about symptoms and should not encourage other members to do so

    Post also edited to remove inappropriate language and doctor bashing...Liz spine-health moderator.. Please read the Forum rules
  • sandisandi Posts: 6,343
    edited 08/16/2014 - 4:47 AM
    is seeing the correct doctors for the conditions. It appears that both of you are seeing your primary doctors for disc problems, and they are managing the pain treatment.
    Starting with your primary is the way to begin treatment, however, when it comes to spinal conditions, you need to see a spine surgeon for further evaluation and treatment plans.
    Liz included a couple of links for you both in her previous response. Proper imaging needs to be done, examinations by the surgeon , follow up testing and referrals for the proper specialists. Most primary doctors are not versed in treating spine conditions beyond a few weeks, or making determinations regarding what other treatments may be helpful or evaluating spine surgery options . Pain management is a specialty all it's own, and offers many options for relieving pain and controlling pain that are not available through the use of your primary doctor.
    Lying about your medical condition is not a smart idea, neither is exaggerating your symptoms, which may get you surgery but the wrong kind or be far more extensive than is medically necessary and then what?
    The worst thing that anyone with spine pain can do is become inactive.Lack of physical activity worsens muscle degeneration and weakness, increases pain, and reduces stamina, all of which will worsen the pain levels.
    It would be in both of your best interests to ask for a referral to a spine surgeon for -and for a referral to pain management for the proper treatment.
    As far as medications go, again, your primary is not the best option when it comes to long term management of chronic pain. Most primary doctors are not comfortable in prescribing pain medications for CHRONIC pain, nor are they as versed at the proper dosages of medications used to treat neuropathic pain. Gabapentin has a very large dosage range, from 100 mg -3600 mg , depending on the condition it is being used to treat. Most patients who are using it for neuropathic pain are in a range closer to 1800-3200 mg per day.
  • SpineAZSpineAZ WiscPosts: 1,084
    As has been suggested, seeing an Orthopedic Spine Surgeon and/or Neurosurgeon can help tremendously. I personally prefer OSS.

    In addition, familiarize yourself with the anatomy of the spine. CClark mentioned some issues that maybe vertebrae based, not necessarily disc based. The numbering of vertebra goes downward. So the L1 is above L2 which is above L3,etc. There are some great videos that explain spine anatomy well that can help. In addition look up "dermatome chart". That helps you see where symptoms correlate to. For example, if there is a problem at L5-S1 it will graphically show you where you may feel pain.

    Ask your primary care for copies of the reports from any xrays, CT and MRI. Any OSS or NS you see will want the actual films, but if you get reports you can review and educate yourself on specifically what was found, to what degree there is a problem, etc
    2 ACDFs, 2 PCDF, 3 LIFs; Rt TKR; Rt thumb fusion ; Lt thumb arthroplasty; Ehlers Danlos 
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